Can't get a diagnosis

[Johnbrooks1973]

Hi everyone I've not been dx with vasculitis but everything is pointing to it apart from my crp and esr level. I was in A&E last Saturday and again on Thursday but they couldn't find anything wrong. I asked about vasculitis but they said it was unlikely because of my normal bloods. I'm in so much pain and I don't know where to turn. I have a appointment with a rheumatologist in three weeks I don't think I can last that long.

[piglette]

Hi John, I am so sorry about the pain you are in. I don't know if you are aware, but around twenty per cent of the population never have raised ESR and CRP even though there is inflammation. This does seem to be a problem to doctors, but you may be one those people.

[Suzym2u Moderator Vasculitis UK]

You can always contact the Vasculitis UK helpline for advice , either by email or phone this is link John or Lynn will help if they can. vasculitis.org.uk/helpline

[Johnbrooks1973 in reply to Suzym2u]

Hi suzy just wondered if you could help me I'm seeing a rheumatologist next week so hopefully I can get some answers. I've developed shoulder clicking in both left and right. If this is caused by gpa and I get treatment will it stop or develop into full blown arthritis?

[Suzym2u Moderator Vasculitis UK in reply to Johnbrooks1973]

You could ring the helpline before your appointment. John is manning the helpline at the moment or you could email him, vasculitis.org.uk/helpline

[Johnbrooks1973 in reply to Suzym2u]

I sent John a message but he didn't reply.