Patient Experiences of Individual Funding Requests ( IFR ) Survey

Patient experiences of Individual Funding Requests (IFRs) survey ( Genetic Alliance/Rare Disease UK)

Have you accessed a treatment or medication for vasculitis through an Individual Funding Request (IFR)? Have you failed to gain access to a treatment or medication that you need via an IFR?

Genetic Alliance UK / Rare Disease UK are looking to hear from patients and their families about their experience of applying for an IFR.

Please fill out the survey to tell NHS England how the IFR is working for patients trying to access treatment to help make sure the process works for everyone in the future.


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