has anyone else had their body thermostat go crazy?

[gsmith]

i can be icy cold in a warm room, comfortably warm on a cold day, also cold on a cold day and warm in a warm room, it can alter over a matter of hours,sometimes at night i kick my covers off, only to wake absolutly frozen

[John_Mills Volunteer]

All sounds familiar but not quite the same. I find difficulty in coping with extremes of temperature either hot or cold. It makes me feel lethargic and certainly if I get thoroughly chilled it just "wipes me out". So I guess it's something to do with the body's thermostat, which is normally very accurate, or maybe it's more to do with way the body adjusts the way it operates to keep that temperature at spot on 37C (or 98.4F). I do find I suffer from hot feet/legs in bed. It gives a rather different meaning to being "hot in bed" - sadly!!

[russellk3 in reply to John_Mills]

Hi John I have the exact same at night time in bed red hot feet and legs have to sleep with them dangling out the bed another gift from gpa

[Jackie29]

Gsmith - yes, yes yes! I can totally relate to all you are saying. My partner cannot understand how I am always hot at the moment when I am usually cold even in summer! I have been saying for ages to him that my body thermostat has gone crazy!

Have no idea why, just good to know I am not the only one!

[DevonLottie]

Oh to be cold! My body temperature shoots up at the least provocation. Can happen when I'm just sitting watching TV! I've put it down to 'just another of those things' that vasculitis bestows us with!

[deniseann]

We have the battle of the thermostat every winter.hubby turns it up and I turn it

down .Im sat under a ceilng fan as I am writing this.Yesterday I could not get warm .

[Hidden]

Mine is rather didgy too but non-seasonal and can swing between extremes in a short peroid of time. I suspect peipheral nerve damage may p[lay a part but clearly the variability of WG et al. brings their own set of physiological complications.

Healthy wishes.

Martin

[JanetR]

Yes, I'm generally a bit cold, but when I turn up heat a little it tips the balance and I get way too hot for a minute or two (hot flush) then cool down again, usually a little too much. Generally better when active in cool conditions. Before I was diagnosed I thought it was just the hot flushes due to menopause, but think it is very extreme, especially the night sweats.

[carlos1979]

I have WG recently i feel like for some strange reason i am going through the menopause,even though i do know that this is not possible but i really hate it i can put my shoes on and then 2 minutes later i have to sit back down as im burning hot and then the sweats start,then im freezing.Its horrid it has let me not wanting to leave my home and feeling paranoid that i smell

[gsmith in reply to carlos1979]

dont be paranoid, just make the deodorant manufacturers very happy. i think with Wg the secret is hold your head up and say life is sometimes a rude word (insert your own choice) but its not my fault, take me or leave me, my temperature control doesent seem as bad as some of you, i cope by using a fleece with sleeves when relaxing, and throwing it off around 10 pm when i warm up, it seems wierd that my temperature variations are in a room at a constant 21 degrees

[runnerwithwg]

Body temperature control may be a part of the bodies automatic function control by the autonomic nervous system centred in the hypothalamus. Gross failure of the autonomic system is need highly specialised attention from a neurologist that deals in autonomics. There are tests that can be done and help available, but if the failure is marginal (as it was in my case) then the results can be difficult to read. However, it was helpful for me to have had the tests, as these are now the baseline figures and when the tests are repeated they may show a change which could help the doctors with their treatment plans.

[magcor]

Wow, this site is a wealth of information.

I suffer from icy cold to sweating ++ and just put it down to age.

Never considered tell the consultant about it.

[pigeon12]

I have GPA vasculitis and am wiped out by a warm sunny day. In sunshine I start to feel uncomfortable very quickly and get dizzy and lethargic with an itchy scalp that comes on suddenly and drives me insane. I look forward to cooler weather and a return to a reasonable energy level so that I can get things done. I think the nerves in my skin have been damaged by the disease and this is the cause.

[Wageners]

yes i can relate to these comments. i seem unable to regulate my own body

temperature at all, no matter what the weather.