Ayesha

[Ayesha1]

I have lymphocytic vasculitis, asthma, joint pain in feet and hands and also migratory athritis. Sjograns syndrome, Unknown kidney pain, peripheral nueropathy, raynauds, tinitis. Have tested positive to p-anca, Ana, height nuetrophild and low lymphocytes to name a few things.

[Suzym2u Moderator Vasculitis UK]

Not sure what you mean by lymphocytic ? If you write to John, at [e-mail] he will try and help but he needs a few more details, if that is ok?

Bw

Susan

[Ayesha1 in reply to Suzym2u]

Hi Susan, my dermatologist took deep skin biopsies and diagnosed Lymphocytic vasculitis, I think it is just my disease progressing as the biopsies done a couple of years before these only came back with Non-specific inflammation. My Rheumatologist hasn't been able to pin down what I have and I have been sick for 8 years. She is thinking Microscopic Polyangiits? All I know is that i am so over it all. I have two kids 9 and 7 and try to work part time from home running our plumbing business. The past 6 months have been so testing for all of us. Autoimmune diseases are the pits. Thanks for your response.

Cheers

Ayesha

[John_Mills Volunteer in reply to Ayesha1]

Hi Ayesha,

OK - I think we are talking about "leukocytoclastic vasculitis".

Has your kidney function been checked regularly?

You are pANCA +ve but your rheumatologist doesn't know what sort of vasculitis you have???

How long have you had the asthma?

How old are you?

Which hospital do you go to?

What treatment are you being given?

I don't like asking all these questions in the open forum - send me the replies either by email [e-mail] or by HU message.

[Ayesha1 in reply to Suzym2u]

Hi Susan, sorry for delay in replying, I ended up in hospital for 5 days with Serotonin Syndrome. I will email John. Thanks for your reply. Kind Regsrds, Ayesha