since entering this site i am amazed at the wide range of things we suffer from in various forms, oh to feel well again !
hair and nails growing very fast?: since... - Vasculitis UK
hair and nails growing very fast?
On the cylco and high dose pred my hair didn't grow fast, but my nails certainly did. They were the longest and the strongest they've ever been. Unfortunately they are now back to normal and keep splitting. I used to say that the only good thing about having WG was my strong long nails. Doesn't take a rocket scientist to work out that I'd rather have splitting nails.
John never lost his hair while on the cyclophos.
In fact his hair and beard grow like mad now and John is quite proud of his "mop". His finger nails and toe nails also grow like mad so over the past 2/3 years he has to visit the Chiropodist every 6/8 weeks.
He stopped the pred about 4months ago, so not sure yet if the hair/nail growing will change.
He is on Cellcept, Warfarin, blood pressure tablets and occasionally Adcal at the moment.
I noticed the same thing whilst on Cyclo and Pred, healthier nails and hair. I've been off all medication since last November.....1 year this week and even though my nails have gone bact to normal I'm glad to say my hair has never been as healthy. IThe only weird thing is that I've totally lost all my under arm hair (sorry for sharing this) but I guess that isn't a bad thing.
Karen, you share away. I think those are the sorts of things members want to know, especially new patients who are confused by what the drugs are doing to them. And on the subject of unwanted hair, you are not alone. I think in the past eight years I've only had to shave my legs about twice a year.
Has anyone lost their sense of taste? My has been gone for 18 months.
The strange thing is I can taste chocolate, but I cant eat it (I keep trying)!!!! its too sweet and makes me feel sick. I love it too. The sad part is I have gained weight but hey! still here.
Hi patsy, four years ago my taste buds did strange things, within 3 weeks of my treatment starting, a sweet and juicy orange tasted sour & dry, while a "vinager" sour one, tasted like the sweetestof of fruits, this lasted for nearly a year. I still have strange taste sensations, I can`t face my favourite breakfast cereal, but then again I find I like things that before vasculitis I didn`t like, now are quite tasty. Swings & roundabouts
Tony
Well, at least I know I am not the only one was starting to feel unique. Do miss my chocolate though!!. I cant look at food and drink the way I used to, cant have my tipple of a gin and tonic my ankles swell, lot more to this illness than meets the eye. Considering I had never heard of this illness until it struck me down it has had an impact on everyone who knows me and their life.
Patsy
Hi to all my friends on this site. I also have suffered from splitting nails...but I have a cure,,,just buy a special nail file that rubs out the ridges, then buff them up and feed your nails with olive oil...works a treat. Also keep the nails fairly short...did anyone ever see that USA woman with the longest nails in the universe? How on earth did she wipe her bum?? So glad to be back home with my wee dog...actually I don't know where she is but I suspect she is in my bed!!
Love to you all,
mon amies xxx
iam so glad this I found this site because my nails have growed very fast and my feet I to was on cyclo