New member

[Fennahj7115]

I am looking forward to being a member of this group hoping to be able to help others also gain information for myself.

I have churg Strauss syndrome/ pollyateritis nodosa. Neuropathy, diabetes.

[AllyGY2013]

Hi Fennahj7115,

Welcome to our group! I'm sure, like me, you'll find the support and information shared here invaluable.

Ally

[Suzym2u Moderator Vasculitis UK]

Hi welcome to the group.. Have you been diagnosed with a CSS (EGPA) and PAN overlap?

Susan

[Fennahj7115 in reply to Suzym2u]

Yes that was 12years ago after a great deal of trying to get to the bottom of my repetitive illnesses. I have been very fortunate to have a consultant who is fantastic, he and his team have kept me going all these years. The journey has been very rocky but I and my husband have been very well supported.. I try to look on the positive side of things not always easy however I know the medical team have and still trying to make life easier for me therefore I feel I need to try to do the best I can. I have a lot of pain which I have oramorph, maintenance dose of steroids, which has very kindly given me diabetes needing to inject four times a day, also breathing is troublesome and I am on oxygen.

My husband looks after me but I try to be as independent as I can.

I have made a statement that I will not let this condition beat me but the battle does become vert tiring on many occasions. I was always a very active person but this has curtailed most of my physical activities which in turn has made me feel very angry. I still would like to be a useful member of society but due to the sudden onset of the pain renders me unreliable, but I am still searching for the right place to be able to use any of my skills to prevent me being someone who has to give in to this condition.

Fe nah.