High levels of vitamin B12 with vasculitis - Vasculitis UK

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High levels of vitamin B12 with vasculitis

bowler profile image
14 Replies

Could high levels of B12 [ without taking supliments ] be linked to vasculitis ?

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bowler
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14 Replies
Essex-jill profile image
Essex-jill

I have WG but have low levels of Vitamin B12 and have to take medication.

bowler profile image
bowler in reply toEssex-jill

Hi Essex-jill

Thank you for your reply.

I have all the symptoms of WG and waiting for a referral to Addenbrooks hospital my B12 is over 900, just out of range, obviously nothing to do with my suspected WG ?

Essex-jill profile image
Essex-jill in reply tobowler

You will be in excellent hands as I too go to Addenbrookes. Doctor David Jayne and his team are brilliant. So knowledgeable and caring. Good luck.

bowler profile image
bowler in reply toEssex-jill

Thank you for your good wishes,

I already attend Addenbrooks for Giant Cell Arteritis, but that comes under Rheumatology. I have heard so much about Dr. David Jayne and his team on this site, I hope I don't have to wait too long for an appointment.

Essex-jill profile image
Essex-jill in reply tobowler

I hope you don't wait too long either. If you have any problems then ring Sue Reid, Doctor Jaynes secretary as she is very helpful. Let us know how you get on.

cedric profile image
cedric

I have to have injections for b12 very three months because had high levels they are stable now

bowler profile image
bowler in reply tocedric

When you say you had high levels, [ was that high levels of b12 ] if so what were he injections for ?

cedric profile image
cedric

high levels of b12 the injections are to bring it down it is ok at the minuite and the dr wants it to keep it that way hope this helps regards

bowler profile image
bowler in reply tocedric

Thank you for your reply

I didn't know that you can have injections to bring down high levels of B12,

My level is just on the borderline of high at 930

Was your level very high ?

cedric profile image
cedric

yes according to the dr I think it was 1000+ it is down now at the level they satisfied with 700+

bowler profile image
bowler in reply tocedric

Hi.

Did you have any symptoms of too much B12 ? I have a lot of pins and needles in my arms and feet,

cedric profile image
cedric

have you had a nerve conduct done I kept loosing my balance my nerve endings have gone that's why I asked u about nerve conduct

bowler profile image
bowler in reply tocedric

No I haven't had a nerve conduct done, perhaps I will mention it to my Dr.

cedric profile image
cedric

I would if I was see what he says let me speak to u soon

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