hello everyone glad to have found this site .iv just joined today.my problems all started in 08 and im still attending doctors etc for a full diagnoises.in the start it came on me like a viral infection pain arms and hips pins and needles strange feeling in my head tingling senceation numbness etc.with no sign of it getting better my GP sent me to hospital.got the usuall tests done bloods mri on brain all were normal.ms was mentioned but not all doctors agreed with this.
the next stop my GP sent me to a neurologist he told me he could find nothing wrong with me so I went home totally lost but I I visited my GP a week later the report came back with fibromyalgia on it.i took it that's what I had and continued on.however in 2010 i developed a rash on my arms and legs my GP did not know what it was so he sent me to a+e only one doctor could tell me that it was a vascultits rash and gave me a course of steroids for two weeks and it cleared up but left staining marks on my feet.
in the mean time I noticed from talking to people with fibromyalgia my symptoms were different I was beginning to wonder??.I was getting bad headaches and getting sick at times and noticed my memory wasn't as sharp as it used to be.in 2011 I had to go into hospital I had such a sore troath with a stinging tongue and lost my appitite altogether.i had a scope done and the found imflamation in the troath and stomach with h-plori infection also but that all settelled down with treatment
hope im not borning u all now.i still was havening aches and pains especially my calf muscles
with bad headaches and the hearing in my left ear was up and down weakness in my left arm at times and all the other symptoms aswell
so my GP gave me an option to see a different neurologist I did this and I had an mri on my brain last October that was clear he said that I had carprial tunnel in my wrist and put the headaches and nausea down to migraine.i showed him the marks from the rash and asked him did he tink it could be cns vascultits. he told me I would be dead by now if it was .I left again disheartened.
from that time till now I did see an immunologist he looked at me and done a lot of blood tests but they were all ok apart from a low folate and a vitamin d he was happy with the results.i have to visit him again in two weeks things are much the same but the tingling crawling senceation in my head memory problems conceration to me are not improving it.im out of work again as I just cant function the way I use too.sorreeeeee for going on and onn thanks for reading.