I was diagnosed with vasculitis just over a year ago.
I reduced pred very quickly down to 11mg and then by 1mg a month as my consultant thinks it could be a one off as my bloods are ok and I have not had a rash since i was diagnosed.
The thing is i got down to zero pred and found I had severe pain in all my joints
especially at and during the night,I also sweat a lot during the night from putting my head on the pillow until i awake.
I phoned my G.P and was told to go back onto 1mg and i have found after a week i feel 10 times worse with the joint pain and sweating.
I have sort of known all through this that it is more than a one off but I am finding
no one seems to be listening to me,very frustrated and depressed.