It seems every time my dad goes into hospital they find something new. This time we found out that not only has he now got cataracts. his body has now started reacting to his steroid treatments and his spine in basic terms is on its way out.
which means he will soon be wheelchair bound.
I mean no disrespect, i know there are far worse things that could happen. and im so sorry if this post upsets someone.
But this is my dad..... my superman. and im 22 and watching my dad suffer in front of me.
Part of me is so happy that although this is a awful illness. we get a second chance. (a couple of years back it looked like we were going to lose him)
but another part of me thinks that im so selfish for being pleased he is suffering but still with us.
last year my dad walked me down the aisle next year he wont even be able to walk.
Written by
LADavies
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so sorry to read your post, how is your dad in himself and what type of vasculitis has he been diagnosed with? My husband John was diagnosed 13 years ago, he was diagnosed fairly quickly compared to so many, but we did think we would lose him at one point. John copes exceedingly well with his vasculitis but he cannot walk any distance now, or up hills and cannot stand for longer than about 10 mins. He keeps himself very busy with the VUK charity, supporting others and working with the doctors. If you want a chat anytime please do, you can contact either of us through the contact page on the website vasculitis.org.uk or email us john.mills@vasculitis.org.uk
That is really harsh for you both this has brought tears to my eyes as I feel so sad for you this illness is so harsh . The thing is you still have your dad and please make the most of that both my partner and I lost our dads at a very early age so my advice to you have the tears and frustration but make him and every one around you enjoy everything he wants to do before this happens think of the happy memories you will all have . First one he walked you down the isle think of how proud he was to do that . Iknow its hard but be positive and I like to think that fellow vasculitis suffers will be there to support you and your family whenever needed .
LADavies,
Hi LADavies,
So sorry to read about your Dad. My father had a chronic, debilitating condition as well and I appreciate how hard it is to see them like that.
I think the best thing you can do to help is make sure your father is receiving the best care and treatment that is possible. You mention steroids but is he on any other treatment at all and how much experience do his Dr's have with vasculitis?
I would urge you to take up Susan's offer, she and John are a mine of information about all things vasculitic.
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good days and bad days
On a more morbid note... Lol
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More than fed up.
