Vasculitis UK have just received an offer of... - Vasculitis UK

Vasculitis UK

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Vasculitis UK have just received an offer of starting/supporting a Vasculitis Support Group in the Portsmouth area.

Suzym2u profile image
Suzym2uModeratorVasculitis UK
16 Replies

If anyone is interested in joining/supporting this new Vasculitis group, please could you let us know as soon as possible, either here or by private message.

thank you

Susan

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Suzym2u
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16 Replies
Sheila42 profile image
Sheila42

Would be interested in joining

Sheila42

egl1966 profile image
egl1966

Susan, I would be interested in joining but still not diagnosed 100% as yet

thanks

Gill

Suzym2u profile image
Suzym2uModeratorVasculitis UK

thank you, it is looking quite promising will post details here as soon as something is organised. :-)

julsno profile image
julsno

Yes I would like to join, I am in Soton.

Suzym2u profile image
Suzym2uModeratorVasculitis UK

We are just waiting to hear from a medical professional who maybe supporting us on this and we will be able to get the group up and running very soon. :-)

Suzym2u profile image
Suzym2uModeratorVasculitis UK

yes, VUK seem to have support so will post some info in the next few days. The meeting is planned for July :-)

jen71 profile image
jen71

Hi I would be interested I live in Portsmouth I have systemic vasculitis

Have been looking for a local group

SwgS profile image
SwgS

Would it be in QA? Sounds good. One of the Rheumatology consultants has a passion for Vasculitis

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply to SwgS

Yes I think it is, but it is still just at the planning stage. We will create a post later in the week and there will be a page on the website too under Events.

SwgS profile image
SwgS

I also know 3 more ladies who are not on here who would be interested too

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply to SwgS

Great news... when we have finalised the details the information about the Support Group Meeting will be on the website later this week. :-)

GT_321 profile image
GT_321

I'm interested in Joining.

Sarahjh2004 profile image
Sarahjh2004

I am definitely interested. Samantha from Bognor is too.

Suzym2u profile image
Suzym2uModeratorVasculitis UK

The date will be the 19th July at the hospital in Portsmouth , we are just trying to finalise the details.. So put the date in your diary and watch this space :-) v

Suzym2u profile image
Suzym2uModeratorVasculitis UK

Full Details, with who to contact, will be on the website in the next couple of days :-) as soon as they are, We will share the link here. :-)

‘Living Well with Vasculitis’

In connection with Vasculitis UK the Portsmouth Rheumatology team would like to announce a meeting to discuss the introduction of a support group for patients with all types of Vasculitis, (including GCA/Temporal Arteritis, Wegener's Granulomatosis(GPA), Churg Strauss(EGPA), Takayasu’s Arteritis)

Queen Alexandra Hospital, Cosham, PO6 3LY

Saturday 19th July 2014

09:45- Registration and Refreshments

10:15- Welcome Sr Paula White, Rheumatology Nurse Specialist

10.30- The role of Vasculitis UK-John Mills, Chairman Vasculitis UK

11:15- Your Vasculitis Questions answered- Julie Ingall, Rheumatology Senior Sister,

12:00 Close

Suzym2u profile image
Suzym2uModeratorVasculitis UK

the details are now on the website :-)

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