Route map for vasculitis

[Bailey24]

I have just received my copy of The RouteMap for Vasculitus - I have to say I am very impressed with the amount of information & coverage in it - it will be a very useful source of referral & information for me as a parent of a child with Wegeners Granulomatosis & I would certainly recommend it to anybody dealing with Vasculitis.

[PatriciaAnn]

Thank you Bailey 24. Your comments are very much appreciated.

PatriciaAnn (Editor of the RouteMap)

[Poppymichael7]

I am waiting for results of an ANCA test to see if I have Vasculitis and at my wits end till results come through. My legs are in such a mess with all these big blood splurges. They are black when they come up and some of them full of blood. They take quite a while to change colour and weeks before they fade away. I just feel I'm getting too old to cope with all these illnesses that have come out of the closet at me this year. This is the fourth one to join my outstanding diseases. I'm so fed up. Please excuse my rant but that's how I feel this morning. Could go on and on but best not, anyway folks thanks for listening xxxx

[Suzym2u Moderator Vasculitis UK in reply to Poppymichael7]

Maybe we can help poppymichael7 ? I have forwarded your comment to John

Best wishes

Susan

[John_Mills Volunteer in reply to Poppymichael7]

Hi, if you have particular problems please send me a message telling all about it. I don't like too much being on the open page, so a private message is best. We all go through a difficult time when the illness strikes, but it does get better. Probably what seems to be several illnesses is just the dirrerent manifestations of the same disease.

John

[Suzym2u Moderator Vasculitis UK]

With out Patricia's hard work in collecting information and producing the Route Map, literally hundreds of hard copies of the Route Map would never have been posted to Hospitals, GP's and specialist nurses all over the UK.

Vasculitis UK are also very grateful to John Mills and Genetic Alliance UK for giving VUK the opportunity to produce the Route Map for Vasculitis, also all the doctors who have a special interest in Vasculitis who have contributed to the Route Map. I believe there will be another updated version of the RM available in the next few weeks.

[DBH1969]

Sounds interesing how do get the route map?

[John_Mills Volunteer in reply to DBH1969]

You can read the Route Map on line. vasculitis.org.uk/about/rou... Or order a hard copy from the shop vasculitis.org.uk/shop

Best wishes

John

[nannysaurus]

I would be interested in reading this. Can I get a copy or are they for gp hospital clinics etc?

[DBH1969]

Thank u

[DBH1969]

I had ben reading the route to map I agree very useful information especially in my area of WG.

[Davidhindmarch]

My step daughter has just been diagnosed with a form of vasculitis which hospital/ specialist would either yourself or subscribers recommend ? Thanks .