A Letter To Patients With Chronic Disease

[RichardE]

This is quite old so you may have already seen it but I believe it's going viral at the moment...

It's a fascinating insight into a Doctor's pespective on chronic disease.

more-distractible.org/2010/...

[HiveMind]

Excellent, as were the comments from patients at the end of the article. Ixchelkali had some very pertinent comments too.

Thanks for posting the link RichardE!

[HiveMind]

Excellent, as were the comments from patients at the end of the article. Ixchelkali had some very pertinent comments too.

Thanks for posting the link RichardE!

[RichardE Volunteer]

Glad you found it interesting. Some of the comments are good too aren't they. Worth reading through.

[Albasain]

Hi Richard,

Brilliant reading this. It mirrors much of my own experiences with doctors both with dealing with my wife's conditions and also with my vasculitis of date. I gave my GP a copy of the Route Map of Vasculitis. He was so pleased to have it as his knowledge on the subject was limited. As a result we can both work together with better understanding.

I also agree with the writer that consultants often omit to inform the primary care doctor as to their findings though this is improving. So I can understand the writer's comments.

Dave (Albasain)

[BronteM]

I have a friend whose daughter is a GP. After my friend told her about my strange symptoms and diagnosis her daughter commented that she would find it 'really scary' if I was one of her patients. Thinking this comment through I learnt a lot, and have kept it in mind ever since. I've tried to stick with one of the doctors in our practice, so that she and I can learn together, and we both have some idea of what my 'normal' is.