covid vaccine

[Barbara-C]

Hi I haven’t been on here for quite some time but I would like your thoughts on Covid vaccine..I have had PT and T for a long time..since having the covid vaccine I am sure my tinnitus has got worse ..it’s now a loud continuous high pitched hissing and squealing..I have had all my jabs except June one ..I am due another end of month but don’t know whether to or not ..sorry for long post but would appreciate any advice..thanks .

[perlcoder]

Hello Barbara,

Any comment involving the vaccine is controversial, and I generally avoid discussing it anywhere. Since your question is about T, and T is too serious to ignore, I will respond in as briefly and value free way as I can.

I am fully vaxxed (covid, flue, shingles) - partly because I am also somewhat immunocompromised due to chemo years ago - so the NHS nags and protects me, and my wife worries.

I have had worsening T for more than 20 years, and it is, of course, difficult to attribute any particular cause to that. I do not, however, think that my worsening can be linked, temporally at least, to any vaccine or medication. It just happens.

I had my autumn 'flu and covid yesterday. I will report back if I note any deterioration in my T.

By the way, as posts here go, yours was short and to the point. I write War and Peace sometimes in response to The Lord of the Rings. 🙂

Best wishes

[Happyrosie]

Tinnitus UK have info on their website - put “vaccine” as a search term in the search box top left.

[Barbara-C in reply to Happyrosie]

thank you will look.

[Burntorangeheresy]

I almost certainly contracted T from my second AZ. But I have had 3 since ( prob 1 more to come in the next month ) and it hasn't changed my T for the worse or better fwiw

[AgedCrone in reply to Burntorangeheresy]

I only have mild Tinnitus, but I had very nasty side effects from both AZ vax 1&2.

I have recently seen a neuro surgeon (not related to Tinnitus) & when I mentioned to him that I am sure my overall symptoms worsened after those vaccines..,he said that had happened to a lot of people. I stopped having Covid vaccinations after 4 jabs.

[Barbara-C in reply to AgedCrone]

Thank you ..that’s very interesting..I’ve had all jabs since covid started barring one this June ..my tinnitus is very loud now .

[Barbara-C in reply to Burntorangeheresy]

Thank you

[Positivechangeplease]

I would expect it’s coincidental and it’s just the tinnitus worsening. I’ve had tinnitus since childhood but it started to get worse when I was 6 months pregnant after a flight. Flights don’t usually affect my left ear because of my ear drum hole but honestly who knows why. I doubt it’s to do with the vaccine. Just one of those things maybe

[Barbara-C in reply to Positivechangeplease]

Thank you for reply.

[Minsky]

Hello Barbara. I cannot give advice only facts that affected me. One day after a Covid jab in 2022, boom! I developed terrible pulsatile tinnitus. Maybe coincidence maybe not who knows. All I know is I never suffered this debilitating condition before and some American research suggests a possible link with the vaccine I was given. I will continue my flu jabs but will not be having anymore covid jabs. Obviously you must do what’s best for you but I won’t risk my PT getting worse. It’s ruined my retirement and trying to ‘habituate’ to the pulsing in my ear is a daily nightmare. All tests negative for other reasons. Best of luck, and make the right decision for your own health.

[Barbara-C in reply to Minsky]

Thank you for your reply..sorry you are suffering too..I dont enjoy my retirement now and it’s affecting sleep ..take care

[PTtoolong in reply to Minsky]

Hi Minsky & Barbara, I also have terrible PT that showed up in 2022 after 4 covid jabs & one Covid infection. I have had more tests done than I could have imagined here n the US. Including brain angiograms & venogram. No success in ID-ing the cause. There are 4 clinics in the US that specialize in treating PT specifically. 2 at UCLA San Francisco, Northshore University Hospital/Northwell health in Long Island, New York. (this is where I went earlier this year) Dr. Athos Patsalides is an incredibly brilliant interventional radiologist. But he was not able to help me. Also a clinic in Chicago. & Pennsylvania. I am from UK, but I've lived in the States for many years. If anyone is interested I'll include some web sites for your research:

pennmedicine.org/for-patien...

radiology.ucsf.edu/pulsatil...

athospatsalidesmd.com/conta...

I deeply empathize with all of you who suffer with T & PT. If I ever find a way to alleviate it, I will certainly share it with you all,

Carol (Florida)

[Barbara-C in reply to PTtoolong]

Bless you thank you for reply x

[Hopeful108]

Worrying about T makes it worse, so if you worry the vaccine will affect T, then it will, but because of the worry rather than the vaccine itself. In which case, decide based on your level of concern/worry rather than scientific likelihood. Good luck in whatever you chose.

[Barbara-C in reply to Hopeful108]

Thank you .

[bubbagirl]

Hello Barbara, the vaccines are always subject to controversy and at the end of the day it is really personal choice. I have chosen not to have the flu and covid vaccines again but that's just me and I know others who have and others who are opting out. Best of luck, you will make the best decision for you.

[Barbara-C in reply to bubbagirl]

Thank you for reply .may I ask if you if you noticed that your T got worse .

[bubbagirl in reply to Barbara-C]

Hi again. I have tinnutis in one ear which comes and goes but I have throat problems as well so its another thing! Generally Its copeable. I did not notice any difference after the Covid jab but just decided I had enough to cope with so I wouldn't have another jab. Just my decision. Don't think too hard about it, just follow your own instincts, you won't be wrong! Good luck

[Barbara-C in reply to bubbagirl]

Thank you .

[Tal-r789T]

Prior to COVID I had had bouts of T, usually after a cold or something. My hearing was okay, not great, but nothing that warranted any additional checks etc. However after my first COVID infection and around the time I got it a second time (before the vaccines were available) I started to lose my hearing very quickly.

I have to be honest now looking back (with having experimented with lots of things, (changing diet, relaxation techniques, etc) and gradually getting some measure of normality back (with the help of HA, maskers etc) I think C19 itself probably caused my hearing loss and T. Apparently there are links to Long COVID etc.

I didn't notice anything after vaccines.

[Barbara-C in reply to Tal-r789T]

Thank you.

[annpavitt250448]

Had mine yesterday. No longer increase in to tinnitus

[Austen17]

Hi, I've had tinnitus for a long time and pulsatile tinnitus for nearly 2 years. I noticed my PT started after an ear infection and a long period of quite intense stress. I had no vaccines in the period leading up to the PT starting. Best wishes.

[Barbara-C in reply to Austen17]

Thank you for reply.

[Kellythecat-74]

I have had all my covid/ flu jabs and not noticed any difference to my T . The only reaction I had was when I had the flu and covid together. Felt awful and stayed in bed for 2 days. Now I have them separately a few weeks apart. So sorry for your dilemma. Its not an easy choice. But I do understand as my T worsened after going on statins for 5 days . I refused to take anymore. I said that I'd rather take my chance with raised cholesterol levels. ( have just gone back on a different statin very low dose and its fine)

[Barbara-C in reply to Kellythecat-74]

Thank you for reply.

[ModelMetalworker in reply to Kellythecat-74]

Hello, I had a similar bad experience with Atorvastatin, which one are you on now please ?

[Kellythecat-74 in reply to ModelMetalworker]

Hi . am now on Rosuvastatin 5mg ,,, but I had to get my cholesterol down from 7. Managed to get it down to 3. So I can have a low dose statin. What mg atorvastatin were you on? I'm convinced it the strength that causes problems . 2 other people I know on 40mg have Tinnitus . 3 others on 20mg or less dont have it.

[ModelMetalworker in reply to Kellythecat-74]

ok thanks , will look into that, was on 20mg atorvastatin but stopped with severe T.

[Kellythecat-74 in reply to ModelMetalworker]

oh! that's my theory out the window. Have you got to take another statin ? Did your T stop or quieten down ? mine didn't, but maybe that's because I already had T. Even thought I didn't notice it after 20 years. Its hell having to decide on a catch 22. Maybe do more research, pretty sure I read that some statins can help T and others make it worse . Lots of medications/ vaccines can make T worse.

[Georgie322]

Hi, I'm 72. I have had the first 2 vaccines, and I believe, one booster. Never got the second because of controversy and I didn't know what to believe. I have never gotten covid. I think it's more because I don't have family and I'm physically more isolated than usual. I do think I'm done with covid shots now that I have tinnitus. I will get a flu shot.

[Barbara-C in reply to Georgie322]

Thank you for reply ..very helpful .

[D-w-L2023]

I'm 71 and have had tinnitus for over 30 years. I'm fully vaxxed (flu, covid and shingles) and I've not noticed any difference after any vaccination. Having had Covid before the first vaccination there is no way I would ever want to go through that again.

[Barbara-C in reply to D-w-L2023]

Thank you for reply I’m 80 and have had 6 jabs and covid twice ..I always have flu jab ..take care

[PABLR]

I have had every vaccine available for everything having spent most of my life in countries that required all sorts of odd things, and every covid shot since they were first offered. Nothing has affected my tinnitus. And you must remember that causation and correlation are very different. The fact that tinnitus starts sometime and most of us cannot pinpoint a cause, does not mean that if you had a covid jab a fortnight ago and then get tinnitus that there is any relationship between the two. Some causations are pretty clear. That for any vaccine is not.

[Barbara-C in reply to PABLR]

Thank you for reply ..I have had PT and ten years it was quite manageable ..I’ve had vaccines since 2021 6 in all and my tinnitus has been getting worse ..I just wanted to know if anyone else had noticed same ..my next one is booked for end of month .

[Doxiemom1]

mine started after second vaccine

[Barbara-C in reply to Doxiemom1]

Thank you for reply ..we don’t know what is in these vaccines.

[TinnitusUKPat Partner in reply to Barbara-C]

You might find this resource helpful, Barbara, which gives a wide ranging and detailed insight into the composition of each of the available COVID-19 vaccines currently available in the UK - coronavirus-yellowcard.mhra...

Clicking the link 'regulatory approval' for each vaccine has the Government's published information about composition, usage guidelines and other information which is publicly accessible.

[Barbara-C in reply to TinnitusUKPat]

Thank you for reply

[Georgie322]

I saw what you wrote and I do get the hissing sometimes. It feels like it's in the middle, in the back. I started the whole thing with 10 days of pulsitile, then nothing for about 3 weeks. Then the regular ringing came. Today I had just had 2 days of quiet, then I had a hot dog, and then the hissing started. I guess it's from the salicylates in the dog. It's coming down a little. It was quite loud

[Barbara-C in reply to Georgie322]

Thank you for reply ..I am glad you get some quiet days , since covid I don’t get any respite it’s continued non stop high pitched noise..take care.

[Jools7777]

Hi Barbara-C,

I’ve had T for some years now. When coronavirus struck in 2020, (first wave), I took necessary precautions to protect myself and by luck or fluke I got through it. I got myself vaccinated as soon as I could and got the booster etc. April 21, I was infected by the virus and became very ill, the NHS organised an experimental viral treatment and it did help. The only condition for taking these drugs is I had to agree to give regular feedback. Anyway, during this time, my T wasn’t any different and after recovery and further covid vaccines, all flu jabs,(always had flu jabs for years), shingles vaccine, hasn’t made my T any worse, (or better).

It is a very controversial subject and there are many opinions on the subject of covid vaccines. The best bet is to seek medical advice from your doctor, if you’re not sure about the Covid vaccine, as in this case. So much misinformation on the internet and in the media in general. Saying that, some very useful information on the NHS site and NHS app if you have it.

Take care.

[Barbara-C in reply to Jools7777]

Thank you for reply ..

[Bbcoach]

Hello Barbara. Just to add my experience among all the others. I developed my tinnitus almost 1 year after my first covid vaccine and 4 months after my first booster so for me there doesn't seem to be any correlation. I have had 2 more boosters since and haven't noticed any sustained difference in my tinnitus other than the occasional spikes that apparently everyone gets. All of my covid shots were Pfizer. Don't know if that makes any difference either. I did contact covid last year and really only had a mild case for about 4-5 days. Didn't really affect my tinnitus very much. I do agree with the comment by Hopeful 108 that the stress of worrying about the effects of the vaccine could cause the increase. Just information about my experience. Wish you the best.

[Barbara-C in reply to Bbcoach]

Thank you so much for your reply .. I will have to put things in perspective ..take care .