Has anyone found that even taking their medication that their symptoms still have not improved or got worse?:-(

[wogily]

[Hidden]

Hello,

Can you please tell us a bit about yourself. What are you taking? What are your symptoms?

Which tests have you had done? What were the results and the reference ranges?

Jane x

[Sylvamain]

hi i'm Sylvamain and i can sympathise with you, i was born with underactive thyroid and i've been on many different doses over the years but nothing changes, i am on 150 mcg thyroxine at present, i feel tired all the time and so low i find myself crying for no reason... in fact over the years my condition has worsened and nothing the doctors have done helps... i have reached the point of hopelessness...

[sporty333]

Yeah I find the meds aren't working for me too. Well not that I am aware if anyway. A year in and still ill....

[tarrago]

Please ask your doctor to put you on T3 and low dose of Naltrexone. You will notice a lot of difference.

[marmaris in reply to tarrago]

Hello could you please tell me what Naltrexone is please?

[wogily]

HI my name is Gill I was was diagnosed with an interactive thyroid about 15 years ago. Was put on levythyroxine at 50 micrograms, had s blood test a year later and was taken off it as my results were normal. Two years ago I was ill and went to my GP had bloods done and now I have auto immune disease. I am back on 50 micrograms of levythyroxine. Since Xmas haven't been feeling to good, my weight has gone up, my knees and hands hurt all the time, I get really low, I feel like I'm a hypochondriac. I'm fairly new to this and don't know what to do? Can I s ask my gp for blood tests and what do I ask for? When I phone for results they just say yes they are normal! I am due for blood Wed morning and doc Thursday. I have to write things down because I forget.

[greygoose in reply to wogily]

So you've been on 50 mcg of levo for two years? Not surprised you're not getting any better! 50 is just a starter dose, you should only be on it for 6 weeks and then it should be increased. Your GP obviously knows nothing about thyroid.

What tests do you usually get? What you want is TSH, FT4 and FT3 - but I doubt if you'll get FT3 from your GP. You should also test iron, vit D and B12.

The best thing is not to just phone for results, but go and ask for a print out. It is your legal right to have a copy, and 'normal' is not a medical diagnosis, it's a programme on a washing machine. You need the actual figures and you need to keep copies so that you have your own records.

You are not a hypochondriac, you have just been very badly treated by your doctor. It's time to pût your foot down and insist on proper treatment. It is your right.

Lots of hugs, Grey

[Barbaraj in reply to wogily]

Sorry you're not feeling too good. When you go for your blood test don't take your levo before it - it may give the impression that you are adequately replaced when you most certainly are not taking into account your symptoms. Also, ask for a printout of your blood results - you are entitled to them by law - and put them on here. There are many knowledgeable people who will interpret them for you. Don't forget 'normal' to some doctors doesn't mean that they are! Have you though of asking for T3 - the active hormone? If you would like further info on this please get back to me. Barbaraj

[shaws Administrator]

I had more symptoms and felt worse after about 8 weeks on levo.About 1 year later I switched to T3 alone and then NDT and haven't looked back since but had to go private.

[snowstorm]

Yes. Was on T4. 18 months in when on 75mg started to feel ill. NO feeling of unwellness before that, just tired and fatigued. Long story cut short --- ended up with 35 side effects, took myself off it for 9months twice, each return to meds raised ALL those side effects which went with the exception of fibromyalgia (that went period). The T4 was levo by the way. Then they changed it to eltroxin which produced 3 more ghastly side effects.

New endo agreed T4 not for me so now trialling T3. A little better but more side effects including a surge in intolerance to exercise, which by the way, is one of the strong signs/symptoms of adrenal fatigue. You did ask. I NHS did thorough testing and questions befroe people were put on it many of us would NOT end up in the state we are in.

Am now also, along with some others, being referred to Addenbrooks Cambridge for laboured breathing which has increased a great deal since T3 started. AM only on 1/4 20mg tab every other day.

[wogily]

Thanks guys still confused about T3 and T4 what is this never had any of this explained to me?

[Hidden in reply to wogily]

thyroiduk.org.uk/tuk/diagno...

Start here, loads more on the main website.

Louise

x

[Heloise in reply to wogily]

This is a rundown of lab tests that might indicate the useful components to treat hypothyroidism. Very excellent website to answer other questions as well:

stopthethyroidmadness.com/r...

[Barbaraj in reply to wogily]

I have info re T3 including studies and European Guidelines. Just let me know and I'll send them.

[theezoo]

B12 deficiency was my answer to all of the above and since posts like these were so valuable to me when I was feeling bad I have decided to post what gave me relief. I was diagnosed hypothyroid and put on levothyroxine and was mad and unhappy all the time. Got off. Got on Synthroid. I could not stop crying for no reason. I was so tired all the time and could hardly get out of be in the morning. I gained 20 pounds because all I wanted to do was eat. I couldn't clean my house or make a grocery lists. Doctors told me I was depressed and it was not my thyroid and I should go talk to someone. After 3 days of taking a 1000 Mcg B12 supplement most of my symptoms were 90% better! Hypothyroid people are at higher risk for B12 deficiency so please get it checked or just start taking it. You can't overdose on B12. Do your own reasearch and check it out. i read a book called "Could it be B12" that was extremely helpful.