Just wanted to update my palps/medication saga and to share my latest findings.
After having the many blood tests done by my endo and lots of follow up appts he made me for an adrenal stress test, bone scan and the final one today an echocardiogram to say I feel in between something akin to a pin cushion and a laboratory animal, with the countless tests, needles and scans I have now had, would be an understatement. Saying that, at least I know he has given me a thorough going over and everything that could have been checked has been checked.
The bloods showed up that I was low in iron (could have strangled my GP as I had been pointing out that my RBC - red blood count - wasn't right for over a year) and also that I was low in vitD again.
Went back on 50,000iu vitD for a week (which started up my palps again big time) and started on 200mcg's iron supplements. Had a iron blood test done by my GP last week and it showed that my iron levels had not moved much so she told me I had an absorption problem and to take it with either orange juice or VitC. Started taking it with Lambert's VitC powder and within three days my heart palps stopped. That was a week ago and they haven't returned so, fingers crossed, hopefully I have seen the last of them.
Having now research low iron/thyroid issues I find that, not only does it stop T4 converting to T3, but it also causes the symptoms of being hyperthyroid if you are on T3 (which I was) and the main symptom being erratic/fast heart rate. It can also play havoc with the adrenals. So could this have been my problem all along - something as simple (or neglectful) as my iron levels causing all this due to the fact that my GP was, once again, looking after the purse strings and not the patient? May have been different if she had just overlooked the warning signs but I had pointed them out at least three times - she even did me a little drawing regarding my RBC - unbelievable.
To say that this illness is a battle is an understatement - you think you have your meds right only for them to go haywire again months or years later, you think you have your supplement regime sorted only for levels to drop again and start causing you problems. If it wasn't for this site and the advise and help from the many well informed people on it were would we all be? up the creak without a paddle, that's where.
I also think that one of the most important tools in fighting this battle is yourself - to do your research, keep a check on your results and keep checking (and double checking) what advise your doctors are/are not giving you is a must and one of the most important tools I have found is the word "WHY". If you don't understand something ask, if your unsure of something ask and if your told no about something ask why.
Finally I would like to say a HUGE thank you to a lovely lady I met through this site - she had been with me all the way through my heart/medication issues. She has patiently listened, advised and guided me through good times and bad. I wont name her but just need to say how precious her friendship is to me.