Coeliac UK re now offering membership to those who are seeking a diagnosis or wanting to receive information to support friends and family with coeliac disease and dermatitis herpetiformis.
Previously you had to have a diagnosis to join, they have recently changed their policy.
Also, their is free membership until 30 April 2013
I'm sure a lot of our people will be interested in this. Do you know how much membership will be after 30 April? I couldn't find the info during a very quick look on their website - thanks!
Hi Louise - I thouht that some members would be interested as there are users of this forum who are following a gluten free diet but do not have a diagnosis of Coeliac disease. It is a very useful resource, in the past they did not permit full membership to those who did not have a diagnosis.
Membership fee categories:
Free membership until 30 April 2013 - then (unless they change from 1st May)
Individual, £20 per year- for adults or parents and carers of a child under 16 years.
Concessionary, £10 per year- as above for those on a reduced income, eg Registered unemployed, students and those on a State pension or benefits.
hi maddie ,i have coeliac disease ,do you ? was diagnosed at the end of 2010 i have been a member for 2 years and they send you very usefull magazines that are full of good info x
Hi Marsden - I do not have a diagnosis but have just had a blood test with my GP. Having to eat gluten for a few weeks prior to the test has upset my digestive system so even if the test is negative I need to avoid gluten. I know that a negative result from the bood test is not always accurate but I'm not going to ask for a biopsy.
I have a friend who has the condition and she passes on her magazines to me, getting access to the info on the coeliac UK site is goin to be very helpful.
hi ,i believe even if you havent got coeliac having a gluten free diet is better for your body anyway,but not always easy when your out as not many places cater for a gluten free diet. if you do have it it should show up in your blood.i had a blood test and it showed signs of coeliac but to get a actual diagnosis for certain you have to have a endoscopyfor thebiopsy which isnt pleasant,they put a tube down your throat while you are awake,i had to have two as the first was inconclusive. wouldnt fancy anymore either.if you ever want any advice or anything just drop me a line, i dont know anyone else with coeliac so good to chat to people in similar boat. x
Hi - I remember having an endoscopy when I was diagnosed with acid reflux. That's why I know that I could'nt go through the procedure again, I was terrified.
I'll let you know if I have a positive result - Maddie
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