serum creatine kinase: after going back to the... - Thyroid UK

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serum creatine kinase

cheryl3245 profile image
10 Replies

after going back to the doctors as still feeling unwell, aching muscles and constantly tired, have had further blood tests, thyroid level from 1.7 down to 1.1, serum creatine kinase level 764ui/l range is 22-140, doctor report says hyperthyroid myopathy, any body advise on this thanks doctor is consulting with endocine clinic

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cheryl3245 profile image
cheryl3245
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10 Replies
greygoose profile image
greygoose

Well, according to this Wiki entry, it's the opposite:

There is an inverse relationship in the serum levels of T3 and CK in thyroid disease. In hypothyroid patients, with decrease in serum T3 there is a significant increase in CK. Therefore, the estimation of serum CK is considered valuable in screening for hypothyroid patients.[8]

en.wikipedia.org/wiki/Creat...

According to this, the higher the creatine kinase, the lower the T3, so that makes you hypo, not hyper. Or am I missing something?

Grey

cheryl3245 profile image
cheryl3245 in reply to greygoose

Yeah sorry miss typed, I'm hypo not hyper thanks

cheryl3245 profile image
cheryl3245

Sorry hypo not hyper,

RoloHibbs profile image
RoloHibbs

Yes, my CK levels went up to 1380 (<200) just before diagnosis as hypo in Sept. they had been raised for a few months prior to diagnosis, GP apologised and said he wasn't aware of raised CK levels being connected with hypothyroidism prior to my diagnosis.

cheryl3245 profile image
cheryl3245 in reply to RoloHibbs

Diagnosed end of December last year. Did you have aching and pain, did it get sorted

RoloHibbs profile image
RoloHibbs in reply to cheryl3245

Yes, terrible muscle cramps and aches and pains, especially 'coat-hanger' and lower back and thigh pains. Cramps have all but gone now - Aches and pains continue, but are improving. As Jackie suggested, post your levels here with ranges and someone will comment. Karen

Jackie profile image
Jackie

Hi Make sure you have also had T4 and free T3 tests and have a print out with the ranges. Surely if there is a problem ,you would be better seeing an endo, not the GP?

Best wishes,

Jackie

cheryl3245 profile image
cheryl3245 in reply to Jackie

My doctor is speaking to the endo, been on lethyroxine 2.5 month do feel better in myself but still tired and muscles hurt a lot

Jackie profile image
Jackie in reply to cheryl3245

Hi Early days so good that you are feeling a bit better. Muscles are often low vit D ( hormonal), make sure you have had a test. If low then you need a calcium test before treatment. Takes a while with repeat tests, usually permanent. Best on a script from Edno or GP but proved you have a calcium test some people treat themselves. You often need a lot!Forever.There are other useful tests if you do not feel improved ,often takes a year.

Best wishes,

Jackie

Coastwalker profile image
Coastwalker

Hi Cheryl3245,

Hubby like you had weakened muscles and the tiredness getting worse. We suspected thyroid as I too had similar symptoms.

The Rheumatologist said Hubby's muscles were all OK and asked if he had any other symptoms, I smiled and brought out a long list of Thyroid symptoms, one which was weakened muscles, he said there was no connection, he

checked Hubby's Thyroid bloods on his computer and said 'Negative' he was wrong to tell us that as it didn't actually say 'negative' on the blood print out.

I went home did a bit of homework, checked out Creatine Kinase and found that when Creatine Kinase was reading abnormally high it had an adverse effect on your T3.

Then I googled T3 and CK and came across your Posting on here.

Our Doctor has 'listened,' she likes to learn :) and is now doing a T3 and a Vitamin D test. :) :)

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