After further digging into my own blood results and history and poring over info on this site, I am still confused as to my situation. I posted last week asking if I should never have been medicated as four years on from diagnosis I am underweight, I have hives and dry skin, thinning hair, lethargy and sleep problems. I certainly feel a hundred times worse now than I did when first diagnosed. I came across the referral that my GP sent through to the endo last yr and it breaks down all my results and tests (unfortunately without ranges).
When I was first diagnosed in 2008 I had a TSH of 15.81, FT4 of 16.0 and TPO raised 161 units. I did not think I had ever been tested for FT3 but actually have twice, first in June 2010 with TSH 0.06 and FT3 5.7 then again in April 2012 TSH 0.49 and FT3 4.5. I have never had FT3, FT4 and TSH tested all at once, it seems to have been one or the other.
I am confused as my TSH seems to swing dramatically. For example, last May I became seriously concerned that my dose was too high and dropped my levo from 100mcg to 50mcg. I went from TSH of 0.49 in April to 27.38 in July but then in August dropped to 6.38 while still taking 50mcg?? I can honestly say I do not remember ever feeling any difference in 'hypo' symptoms such as lethargy and tiredness, insomnia etc when I have changed dose. I even stopped taking it for a week last year and noticed no effects.
I am currently trying to find a private specialist in the North East area as I am 100% sure I am being treated incorrectly. I have read that elevated TPO antibodies means hashimotos but I have no idea what this would mean for my symptoms and more importantly my treatment.
Once again, any help would be very, very gratefully received. Thanks in advance.