This bloody desease gets me down sometimes, as most of you no, I am on here if im desperate.
I went for a detox, spa and swim, ( suffered the next day)
my friend and I decided ( jokingly) to call all fybro patients, those that have the same opnion as us and dress up as endocronology organs, we laughed and laughed, I am the thyroid and she is the adrenal and the other friends could be a ovary, or a orange a iron and vitamin, use you imaginination lol.
Wouldnt that be great, standing out side parliment asking for change, with a costume of a battered thyroid, and all the other co factors. ( although I feel I am wearing it already)
not funny really is it, the scottish parliment, again i will reiterate remarkable, I think thats where I got my hypothetical ideas. hope i dont offend anyone? I probably be crying in couple of days.
My friend feels we should do it and bring together a team of people that are struggling with different ailments smptoms and diagnoses. it might makes the news in the UK, then we will be put in a straight jacket.
I have nearly finished my supporting letter asking for change and noting how I have and still am effected not only by not bein medicated but the money ive spent for some acknowledgment. Hence the hundreds of pounds the NHS has spent on me a lone, drugs, scans, blood test and I played by the pilsbury rules and followed suite because I had no understanding of the TSH, its good to be able to put a cause to some of your smptoms, but then the treament is another battle.
having a good day xx