Am an underactive thyroid with full horrendous symptons. Was diagnosed in 1995 but that was missed until 2007 when I queried some symptons as my daughter started to get the same symptons I got(back in 1996. My GP then tested me and low and behold I had an underactive thyroid. Since then my stats bounce around and to say I feel like the living dead is an insult to the living dead. I feel and look terrible. Im on 75mg/100 thyroxine, levo something or other, taken 75mgs on one day, next day 100mgs etc..
I found a, what I thought, small lump to the leftside of my neck, above the thyroid. My GP arranged an ultrascan. What it revealed was nodules on the thyroid, and the lump was the lymph node. All the lymph nodes were up across my neck. Worse was the right side a juge lymph node was sititng just under my jaw and basically filled the right side.Bloodtest revealed I had antibodies.
On the scan it looked like the cartoid veins were being affected. I do suffer headaches and dizzy, light headed spells. Bit complicated as my neck vertbra ( got bony claws growths) are crushing the central nerves and veins, including the cartoids.
Since then, my GP sent me to see a Consultant whose expertise is diabetes but complex weird ones like me he loves. He just says thats fine, levels within normal range (at the bottom) his words as you are not experincing any issues its all fine.
Consultant said oh yes yo have Hashimotos, which I took to mean underactive, which I knew anyway.
When I say I am suffering horrendous medical problems and start to list them he just , yes see you in 6 months, heres the blood test have it at 5 months and thats it. When I've queried the nodules and lymph nodes, he pokes my neck and says its fine. Dismisses the lymphs he wont even check them. Ive gone to the GP and she just says I'll bring it up in the meeting and let you know.
How can it be fine, when I can feel the lymph nodes and boy do they hurt, some feel like bolts of lightening running through the whole lymph node line. The thyroid I can feel pushing back into my throat and makes swalowing and breathing problematic. I now can only describe as do a large loud snore which wakes me up gasping for air.
Since this has occured, lymphs etc Ive developed an extra heart beat. Which hurts. Now the lymph nodes are all up over me. Indluding armpit(didnt know there was anythere) across shouder/chests etc. All ache and this bolt of lightening, is about as close as I can to describe it, shoots all the way through the lymph system. So I know now where they all are from the pain.
The sides of my neck, over jaw is swollen. You can feel the righ lymph gland and see a ridge over my jaw bone(hinge) The goitre area does not look swollen out form the front but it feels its more back into my throat. these have been up for a year or so now, my tonsils have been up for 3 years.