Since being on T3 I experience a kind of surge ... - Thyroid UK

Thyroid UK

140,281 members164,998 posts

Since being on T3 I experience a kind of surge going through my brain as I fall asleep. Does anyone else have this?

mstp profile image
mstp
16 Replies

I used to get this years ago (possibly when I started on thyroxin) but put it down to my neck being twisted as I slept on my stomach at that time. I stopped sleeping on my stomach and it went away but now its back since starting T3.

The only way I could describe it then was that it was like standing near a roadside when a huge motorbike roars past at speed. The sound and vibration is very loud and very fast and then its over. Now I am not experiencing the kind of roar I did years ago but it is the same sensation to a lesser extent. It feels like all the synapses in a pathway through my brain igniting at once then its over and, yes, there is a kind of sound involved although not as much as a fast moving motorcycle now. It is more of a hissing noise now I think. I'm not going mad this really is happening to me.

Written by
mstp profile image
mstp
To view profiles and participate in discussions please or .
Read more about...
16 Replies
nostoneunturned profile image
nostoneunturned

Yes! I used to have what I think must be exactly the same experience just as I fell asleep- a kind of short, seconds long, silvery sibilant rushing sound accompanied by a sensation like a siver cord slung internally between my ears (husband used to say kindly "It's just nature filling up a vacuum, honey.") Your description involving synapses igniting at once is a much better one. I had just started T3 in addition to T4, but actually attributed it to some feature of recent migraine onset, diagnosed as "stress-induced", but which I now recognise were probably caused by undertreated hypo. The sound/sensation eventually disappeared. I hope yours does too. No, your not going mad, but if you think you are, relax, I got there long before you and they haven't locked me up.

Yet.

tegz profile image
tegz in reply to nostoneunturned

Nature filling a vacuum- Ha!- But you're bright enough, Nostone... ;)

nostoneunturned profile image
nostoneunturned in reply to tegz

Thank 'ee, kind sir!!

lila2 profile image
lila2

Hi, I have had the same sensation for years very weird, not at all sure what it is but it has never harmed me yet !

mstp profile image
mstp

Thanks both. That's very reassuring!

Jackie profile image
Jackie

Hi Could it be the time you are taking T3? if very late ,perhaps a bit earlier would help.

Jackie

thedoghouse profile image
thedoghouse

Me too, but I've always kept quiet about it in case everyone thought I had really lost it. It is so good to know that all these weird feelings are experienced by others too. x

AliciaM profile image
AliciaM

Gosh I get that....not every night but fairly often....It crossed my mind that it could be to do with my neck, something being restricted then loosened on lying down? I have hypothyroid and hypoadrenal symptoms...all blood tests normal. Having an MRI scan to see if it's a pituitary problem on Friday......but good to know that other people share the same symptoms. Thank you!

mstp profile image
mstp in reply to AliciaM

Please will you let me know what the results are of your scan. I'd like to know a bit more about it. x

AliciaM profile image
AliciaM in reply to AliciaM

will do..strange though that we all have very similar symptoms..I get it just before i sleep too Tats. x

Tats profile image
Tats

I'm so glad to have read your question. I have had this sensation for many months now. It feels like a rush of air and noise through my head then it's gone. As first I questionned myself as to did it really happen as it is always when I'm just about to fall asleep. No idea why but reassured that others have experienced it.

mstp profile image
mstp

Yes, its a bit worrying when you first experience it isnt it? I suppose I'm a bit concerned but not so much as I was years ago when it first happened. Even so it would be good to know what causes it.

Yesterday I had come downstairs and gone over to the kitchen sink, suddenly this whoosh/roar sound, I went forward a bit held onto the sink and thought shit, what was that? It must have been what you all have been describing. You get a similar sound/feeling when you are going to faint or before you faint but I wasn't/didn't faint!

Jacks profile image
Jacks

I just saw your posting - you might like to Google "Exploding Head Syndrome". The exploding refers to the noise, not an event about to happen!

It is quite common apparently especially when stressed or ill that you experience a loud noise just before you fall asleep. I had it for a while after a bad flu virus - it sounded like gunfire. Of course it made me totally awake!

mstp profile image
mstp

Hi Jacks

Thanks for that. You're right. It is a noise. In fact last night I decided the sound I heard was like a loud elastic band twanging. It doesn't always sound the same. Years ago it was like a motor bike roaring past. I'll look it up.

bantam12 profile image
bantam12 in reply to mstp

syndromespedia.com/explodin...

Not what you're looking for?

You may also like...

Hypo AND hyper. Does anyone else have experience of this please?

As per usual this has turned into a bit of a splurge, but wanted to try and give a full picture as...

After a TT in January - difficult time since and then the endo reducing my levo dose I now have been told there is something else going on!

After very toxic thyroid it was removed in January and I have struggled with energy and pains in my...

I very rarely come on here now, my life has changed so much from this time last year...Maybe this will inspire a few of you!!

I have been unwell now coming up to 5 years and now have Hashi's...I tried all the usual ways to...

Would adding T3 to T4 help me with exercise tolerance - anyone have any experience of this?

Hi all. The girls are staying at Grandma's this week and so with a little time on my hands I...

Does anyone else with a TT survive on this dosage?

I feel like I am in the middle of a game of 'how low can you go'. I had a TT in January and was...