After very toxic thyroid it was removed in January and I have struggled with energy and pains in my limbs since. Gradually got the 100 Levo dose up to 137.5 but was told a couple of weeks ago that despite the tiredness and pains I had to reduce to 125 as my heart rate was too fast. I was devastated and endo did not seem interested in what I thought were low vit results.
I went to see my gp and he confirmed that it was necessary to reduce the Levo as my heart rate was too fast and the TSH too low. He however thought that the Vit D was too low and is wanting to do more blood tests as he suspects an issue with parathyroids. Tell me why the Endo does not think this way. It seems that the GP and I know more than she does.
However, he also did some tests on various pressure points on my body (a lot of painful poking really) and suggested that what has happened is that the issue with the thyroid has triggered fibromyalgia (which he said can often happen - he described the thyroid as holding a gun to this condition). Strangely enough my 26 year old daughter has had this also for 6 years. The symptoms seem very similar to those produced by hypo. So I am going to try some of the drugs he prescribed but I am not happy with this as a long term solution as they did nothing for my daughter - her life has been made bearable again under the control of a Chinese doctor and lots of acupuncture. My GP is going to start acupuncture on me next week to see if this can bring some help.
I have spent a few days feeling very cross with the world that something else now has to be considered and that the days of high energy and no pain seem even further away.
Yet again I have to look at my life style (not that it is very stylish) and consider what changes are to be made. I am wise enough now not to set myself up for constant failure so I need to reduce my expectations of myself. This just puts more pressure on my husband though as he has to keep going and pick up my slack.
Has anyone else been told that they have fibromyalgia after a trauma with the tyroid?