Does anyone know of a good Endo down here in Do... - Thyroid UK

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Does anyone know of a good Endo down here in Dorset?

despair1 profile image
13 Replies

According to my GP my blood tests are now within the normal range and my dose of Levothyroxine is 150mcg. He feels this is now satisfactory. However I feel no different. I still have numb tingling hands, legs and arms that feel as if lead weights are attached and a slight wobble when I walk. Not that I can walk far these days I am too exhausted. My shin rash is less red but as itchy as ever and my arms and head itch all the time. After crying down the phone at my GP he has now referred me to an endocrinologist ....but I am not hopeful.

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despair1
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13 Replies
galathea profile image
galathea

I'm in Dorset..... I've not found a good one down here.. in fact I have renamed the one I saw and I refer to him as Guilderoy Lockheart after the Harry Potter character . He was immaculately dressed and checked his looks and hair about every 30 seconds. He also spoke on the phone to someone else for most of the consultation and then was completely distracted. he let me stay on T3 though because he said it was a placebo. In fact he agreed to double up the dose as it was just a placebo.....

PM me for the name... you don't want to waste your time....

The numb tingling hands and feet.... B!2, B12, B12.... what level are you? this is a classic sign.....

G

despair1 profile image
despair1 in reply to galathea

I take mega B12. There are only two Endo's listed down here, so he has to be one of them!

tulula59 profile image
tulula59 in reply to galathea

Hi Galathea

Could you pm me the name of this chap to avoid! My Gp is about to refer me and I don't want to waste my time as you say.

Thanks

tulula59

sarah2237 profile image
sarah2237

I'm in Dorset too! I wouldn't recommend mine saw him once then discharged!! Still feeling tired and achy and had another bout of thyroditis!!

galathea profile image
galathea

In a tearing hurry but will get back later.... Your shins.... Not pre tibial myexodema is it? Google for pictures.....

google.co.uk/search?q=preti...

G

galathea profile image
galathea in reply to galathea

ncbi.nlm.nih.gov/pubmed/162...

despair1 profile image
despair1 in reply to galathea

Yes ptm - prescribed cortizoids but no effect. Given up with these and now use a manuka gel which calms it down. Nothing cures it completely.

I feel I am not responding to levothyroxine so what are my options, if any. I want to see this consultant with as much info as possible about what alternative treatments are available. I have been on this treatment since October, surely now there should be some sign of improvement!

zarjaz profile image
zarjaz

I have seen a sympathetic endocrinologist at Salisbury District Hospital, if you can Choose and Book to there?

Good Luck

tulula59 profile image
tulula59 in reply to zarjaz

Hi zarjaz

Any chance you could pm me with the name of this chap. There are two at sailsbury and I'd like to know which one it was that you saw? Already have to travel some way to get there but noone is able to suggest anyone in Dorset.

Thanks

tulula59

Rock_chick1 profile image
Rock_chick1 in reply to tulula59

Hi there, did you get to find out which consultant in Salisbury. Please let me know via private message as I am in the same positon. Many thanks

tulula59 profile image
tulula59

Hi zarjaz

Has taken me a week to get set up and logged into this blog. I'm really interested in getting up to Sailsbury to see this endo you mention. However, there are two working there and I don't know which one to ask for. Is it the one that also does private work at the New Hall or the one that is NHS only? Really need this info as soon as poss if you could help.

tjtjtj profile image
tjtjtj

I know this a very old thread but I have been referred to an endo by my gp & I wondered where our choose to go. I'm in Dorset too. Any requests of consultants I should avoid. Please pm me if you'd prefer. I don't be very grateful of any advice.

Lisa333 profile image
Lisa333 in reply to tjtjtj

Hi have you had any luck? I have only seen my doctor so far but plan on insisting I see an enfo

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