Its my first day back at work today and so first day back on the site - hope you all had a lovely Christmas and a happy, healthy start to the new year.
My nightmare started way back and those of you on here who are familiar with my story will know that I have been suffering with heart palps for almost a year and late last year I was fitted with a 24hr heart monitor. Went to the GP's on 21st Dec to have a review of my meds and get the results of the monitor and thats when the battle to keep my T3 began.
As soon as I walked into the room I could tell that something was wrong as my doc looked at me over the top of her glasses and shook her head. She followed this up with a "I did warn you didn't I" comment (I had a fight to get the T3 in the first place due to her belief that it can cause heart problems), she then went on to tell me that the heart monitor had shown up a problem, which had a very long name that I cant remember, and will be consulting a cardiologist for advice. My reaction to this was to first ask if there was anything wrong with my heart - no there wasn't - and secondly to argue that it could just as easily be the T4 that was causing the problems.
She took my palse which was 92 and again gave me "that look" and in response I snapped back that of course my heart rate was high "you have just indicated that my T3 will be taken away from me", at this she smiled which had an effect that she wasn't expecting when I almost shouted at her "I'm serious - no T3 no job, no job no mortgage". She then went on to give me a lecture on people taking T3 - wait for it - to LOOSE WEIGHT. Shouting didn't come into it now, I was absolutely livid and with my hand sweeping from my neck downwards I answered between clenched teeth "do I look like I'm loosing weight". I think after this reaction she knew she had gone to far with me and decided to calm the situation down by leaving me to cool down whilst tapping away at her computer.
The outcome of this first visit was no reduction in meds but a blood test early in the new year.
On Christmas day I went to my brothers and asked for a cup of tea with SWEETENERS in, my niece the gave me a lecture on how bad sweeteners are for you and can cause all sorts of nasty side effects so I settled for sugar. Had a think about what she had said and decided to stop the sweeteners all together. Low and behold after four days of no sweeteners the heart palps reduced almost to nil.
Went back the docs for my results and thought I would get in first with my findings so a quick "I think I've solved the heart palps" comment had her looked over her glasses again at me whilst saying "go on then lets hear it". I explained about the sweeteners and after asking me for a run down on how many I was taking, which was 8 to 10 a day plus unsweetened orange squash which also contained sweeteners, her comment of "that makes sense" was like music to my ears. This smug feeling didn't last long as "the look" was back on her face when she started talking about my results.
My TSH was below 0.05 although my FT4 and FT3 were both mid range (will have to admit to you all now that two days before the tests I stopped my T3 as I knew I would definately loose it if I didn't - I am not suggesting that anyone on here do the same but for me it was essential in helping me keep my T3 and I would hate to think what my TSH would have been in I hadn't done this).
The outcome of these results was a "well we will have to reduce something" comment from my doc and a look of horror/determination on mine. Her next comment had me wanting to kiss her whilst doing a little jig around her consulting room (I hasten to add I did neither) "so I suppose it had better be the T4 hadn't it with a further blood test in two months"
I really do consider myself lucky to have a GP like her - even though, like most GP's, she can come out with some really stupid comments from time to time - she allows me an awful lot of input into my medication, will listen to me and most importantly take on board what I have said.
The palps haven't altogether gone but they have lessened considerable which is one of the main reasons for writing my blog as I know a lot of people of here have, and still do, suffer with palps which has made me wonder how many on here are taking sweeteners to help with their weight.
My fight will continue as I'm sure it's not over yet but, unlike a lot of people on here, at least with a GP like mine I have a chance of winning my fight and finally finding the right level of medication.
I thank god for this site and the people on it as without them, and an awful lot of research and hard work on my part, I would not have had the knowledge to hold my own with my GP and would still be under the false impression that the medical profession knows best.