I posted here some time ago that my wife had finally found a doctor who would listen to her regarding her ongoing thyroid problems. He had ordered a new battery of blood tests which confirmed that she had Hashimoto's. She's previously had issues with taking T4 and he was open to the potential for prescribing T3.
However, unfortunately the GP wasn't confident enough to prescribe on his own and so wrote to an endo with my wife's blood values (she is sub-clinical hypothyroid) and her symptoms (she has lots - weight gain, mood swings, tiredness etc etc). He also explained in his letter that she had previously had a bad reaction to T4.
The letter that came back from the endo was short, terse and utterly disappointing! The doctor was so annoyed that he showed my wife the letter and expressed his disappointment in the response. The endo's letter can be roughly summarised as:
- She's sub-clinical therefore should only be treated if absolutely necessary
- If treatment is absolutely necessary there is no alternative to T4 - any bad reaction is highly unlikely (suggesting that my wife is lying??)
- Given her sub-clinical blood values it is unlikely that the symptoms are as severe as she says (again suggesting that my wife is lying??)
There was no mention of her positive test for Hashimoto's anywhere in the letter.
Although annoyed, the doctor wasn't prepared to go against the endo and therefore prescribed her a relatively small dose of T4.
My wife was devastated - she thought we were making progress and then we've been present with this. Although the progress that she's made is clear by the fact that there were no tears and she didn't decide the go off doctors completely. Instead she's trying the T4 and is focused on a low GI and dairy free diet.
She has another blood test after Christmas and although I'm praying for some positive impact on her blood values I think (although this might be my own in-built pessimism) that some of her symptoms have got worse. Fortunately, should her blood values show no change I think we're both up for a protracted fight to get her treated properly.
However, I can't help but be crushingly disappointed - I though we were making progress.