anyone on liquid T4 and if so, does it work for... - Thyroid UK

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anyone on liquid T4 and if so, does it work for you?

11 Replies

I have a problem with absorption it seams, have been self medicating about 4 months on NDT. It's been suggested i may do better on liquid t4, but i'm not keen.

At present i have suppressed tsh, high t3 ( 9.1 when the range is 3.5 - 6.5) and low t4 (13 When the range is 9 - 25) The test was done hours after a dose - i had no idea i was going to be tested - long story, so not too concerned about hight t3

Was feeling good for a while on ndt, but now tired again and peeling skin on face for last month. Maybe i'll up my dose?

Advice welcome, i also have iron def anaemia (take big dose daily but don't absorb it), persistent neutropenia, pernicious anaemia and coeliac.

11 Replies
t3rcam profile image

Hi Bluedaffodil, I was taking Eltroxin liquid until a few weeks ago but had to stop as I was having the same lousiness / toxicity feeling as when I was taking Levo Thyroxine. Now investigating vitamin and mineral deficiency in case this is my problem. I have Hashimoto's and gluten sensitivity. I take adrenal supplements. My last thyroid blood test revealed that my TSH was 128 and my T4 was <5. Two doctors that I have seen recently were confused as they thought I should have looked very unwell and basically unable to function! But I definitely feel worse taking T4. I'm not sure about NDT, I tried it a few years ago and it didn't do it for me but it was when my adrenals were kaput so might give it another try once I get blood test results back and get some advice from this site. Do you take your iron at a different time from your thyroid meds? Have you tried taking iron with fresh orange juice? There is a good liquid iron supplement available in that big high street pharmacy but I can't remember the name of it. Sorry not much help. Keep trying new things and listen to your body. Take care of you.

Thanks for replying - yes i take iron well away from ndt.

I think i'll stick to self med with ndt. I won't switch to liquid unless they offer me a t3/t4 liquid.

It's difficult affording all these supplements. I literally fund and manage everything myself. NHS beyond useless. Own NDT, own b12 ampoules, own g free foods, own liquid calcium, adrenal and thyroid glandulars, etc. You wouldn't think i was a taxpayer!

Jackie profile image

Hi I had a big problem with absorption for a long time. I found it was all down to a rotten pancreas. Mine is lots of things but amongst other tests had a Faecal Elastine test ( a special stool test ) , it was my endo who realised not my gastro-enterologist ! As far as the absorption goes I now have enzymes from the GP, they have to be taken about 20mins before food. They can safely be bought, I am told, from Holland and Barrat as they are NOT drug and purely help absorption.


helvella profile image
helvellaAdministrator in reply to Jackie

Details of the faecal elastase test:

Dannia profile image

Hi Bluedaffodil,

Have you tried Apple Cider Vinegar to help with absorption? It's mentioned in the STTM book, I'm taking it now with my supplements, but have yet to do tests yet.

I have stopped having heartburn since taking it and it helps with so many things so might be worth a try as is fairly cheap too.


LouiseRoberts profile image
LouiseRoberts in reply to Dannia

Hi Nikki

Bluedaff has replied below...


Interesting. How much apple cider vinegar and when?

I know i have achlorydia, but my GP is being difficult about prescribing Kreon. A specialist has now asked her to so maybe she will.

LouiseRoberts profile image
LouiseRoberts in reply to

Just a pointer. If you want to reply to someone directly, you have to click on 'reply to this', otherwise they will not get an email telling them that you have responded.



Dannia profile image
Dannia in reply to

Thanks Isangel :)

Well on my bottle it states 2 tbls in warm water, but I stopped taking that much, I just take 1 tsp in cold water directly before I take any medication.

Braggs from the US is apparently the best (you can get it on Amazon) and it's important to have it with 'mother' and that it's organic.

I bought Bobby's from Devon on Amazon.

Apparently lemon juice is good for absorption issues too.

Moggie profile image

Apple cider vinegar has been mentioned alot on here - NaamiSue swears by it (not literally).

Here's a very interesting link with all the benefits of apple cider vinegar and how to use it.

Moggie x

Thanks all, v interesting

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