This site has helped me so much. I will write a blog to tell how things have improved and its nothing short of a miracle but...
I am Graves, TT, active TED (very) on 100/125mcg levo.
I phoned the surgery for my repeat prescription and when I picked it up a note attached saying that the Endo who I seen a few weeks back had lowered my dose to 100mcg?
At my appointment with the Endo we slightly disagreed over hyper/hypo problems, he's a good Endo, but at the end WE agreed no alteration on meds for 6 months, on the page he smiled and put => in big letters. So we shook each others hands and I left not too down hearted. So it was a big surprise when I to the surgery. I recounted the same to the receptionist nicely and she said, you'll just have to make an appointment to see the Endo. So I said there was a 3 month waiting list and I didn't want to get ill again by lower my dose. She helpfully called one of the GP's and they said it was on my notes to lower by the Endo. So I have now managed to get the letter and it says.
'Michelle seems to managing quiet well at the moment but complains of lack of sleep and heart palps which could indicate being hyper. It could be argued a reduction in meds'
But I am not hyper, believe me after 10 or more years of being hyper, I know the difference. I suffer more hypo now.
Here are my bloods but.......... this is the best I've felt for years. I've made an appointment today to see MY own Gp, first appointment available 17th December! Please give me some strong medical reason why he should keep me on my current meds..... what a nightmare.
Free T4 229-23
THS 0.24 0.55-4.79 abnormal
Free T3 4.73.5-6.5