Our son has had issues all of his life but this came to head about 11 months ago when he started having dizzy spells at school, this resulted in an attendance level of 74% over this year. School would either send him home or we would keep him off. We were called in for a meeting with EWO and the result was a referral to the school nurse, school were quite clear in that they wouldn't authorise any more absenses without medical evidence.
Moving on our son was referred by GP to Paediatrician, paed sent him for 2 EEG's and hearing specialist. No bloods at this point had been done. This was now appx May time. We approached the summer hols and his condition got worst, he was playing on his bike out of the front of the house and I saw him go down when I looked at him he was deathly white, shiny, waxy and very unusually cold. I took his temperature and it was 93 f. I phoned NHS direct and they told me on his next attack if I couldn't get his temp up in 20mins I must 999 him to A&E. It took me 2 hours to raise his temp the first time( this must have been what was going on in school). The EEG's came back normal and we have Great Ormond Street in Oct. I then went on to pester the Paed for earlier appt(December was our next appt) he then struck us off for pestering his secretary. He asked us to keep a diary and I felt this was new and very relevant. I then went back to G.P who referred again, new appt with unknown on Oct 21st. By this time i'm angry, we went to A&E and sat for 2 hours waiting for his blood to be done. I then found thyroid uk and posted results etc on here. They are as follows TSH 3.3 freeT4 13, I was told these were normal, I then went back to G.P and asked for another test after help from red apple, the results were TSH 5.3 andT4 12. My G.P has said he feels it is unusual because people don't have symptoms until it reaches 10. He said we must wait for paediatrician in October. My son now aches in his legs, sleeps alot, has now gained 6lb in the last 2 weeks. The G.P says he is going to tell school nurse that he has to have someone medically trained with him at all times in school and not just a first aider. My biggest worry at the moment is managing his symptoms and the time it is taking to sort him out. Why are they so laid back about everything. I should say his anti-body test was normal. Any help you could give me would be really appreciated. Thankyou.