is there a link between under active thyroid an... - Thyroid UK

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is there a link between under active thyroid and tendon problems?

fanover profile image
14 Replies

Hi, I was diagnosed with an underactive thyroid in 2005. About 10 years ago I had a problem with a tendon in my hip. Walking was very painful and I couldn’t use my leg to go upstairs. Physio and steroid injections did nothing and then a friend suggested turmeric. It settled down within 5 days and I had no further problems until November 2024.

Since then it’s been up and down and 5 weeks ago was so bad I couldn’t put any weight on that leg. It’s improving slowly and today I saw my podiatrist. After explaining why I was walking with a crutch she asked if I had a thyroid problem which surprised me but she has 3 other patients with both tendon and thyroid problems. All were referred to endocrinologists for further investigation. Has anyone else had this?

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fanover
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14 Replies
greygoose profile image
greygoose

Thyroid hormones are needed by every single cell in your body to function correctly. So, if there's not enough in your system, problems can occur anywhere and everywhere.

jgelliss profile image
jgelliss in reply togreygoose

GG your so Right. We don't realize how important Thyroids are for us until things start feeling not right for us. Literally from our Heads to our Toes and Everything in between. In my personal experiences I feel that there is not Enough Awareness when it comes to Thyroids.

greygoose profile image
greygoose in reply tojgelliss

Absolutely not, no.

jgelliss profile image
jgelliss in reply togreygoose

👍👏👏👏👏

arTistapple profile image
arTistapple

What form of turmeric did you use? I have similar in my hip. Tried some form but I found out later it was not suitable (not strong enough).

fanover profile image
fanover in reply toarTistapple

10 years ago it was 500mg Turmeric. It was suggested 3 tablets/capsules for a week and then reduce to 2. After 5 days my pain had gone so I dropped to 2 then. Since then they’ve added bioperine to turmeric but it’s not helping this time.

arTistapple profile image
arTistapple in reply tofanover

Presumably this bioperine was added to make it more effective. So often not the case. I think I might give it another go though, since you had some success. Thank you for your reply.

fanover profile image
fanover in reply toarTistapple

It’s worth a try but doesn’t work for everyone. If you’re on any other medication you should check with a pharmacist that there are no interactions. I know you can’t take it with blood thinners.

arTistapple profile image
arTistapple in reply tofanover

Oops! That’s that then. I am on blood thinners for a year. Thanks again forgetting back to me.

SlowDragon profile image
SlowDragonAdministrator

welcome to the forum

How much levothyroxine are you taking

Do you always get same brand of levothyroxine at each prescription

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Is your hypothyroidism autoimmune

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

What vitamin supplements are you taking

Lower vitamin levels more common as we get older

For good conversion of Ft4 (levothyroxine) to Ft3 (active hormone) we must maintain GOOD vitamin levels

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

NHS only tests TG antibodies if TPO are high

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

ALWAYS test early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Only do private testing early Monday or Tuesday morning.

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test

If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endocrinenews.endocrine.org...

In days before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 if last test result serum B12 was below 500 or active B12 (private test) under 70

fanover profile image
fanover in reply toSlowDragon

Wow, that’s a lot to take in. I’m currently taking 100mcg daily with 25mcg every other day because they won’t provide 12.5mcg where I am. At present brands are changing on what my pharmacist can get hold of. It’s always taken first thing in the morning with just a glass of water and breakfast an hour later.

I think they only test my TSH and I have no idea whether it’s autoimmune or not.

I take Vitamin D, Vitamic C with zinc and Turmeric with Biopeperine.

My recent annual blood test showed a TSH level of 0.50 and that was 4 hours after taking my Levothyroxine. I’ll remember not to take it next time! All other tests came back normal. I don’t think my vitamin levels were checked though.

SlowDragon profile image
SlowDragonAdministrator in reply tofanover

Suggest you

A) work out which brands of Levo suit you best and only get that brand

B) get FULL thyroid and vitamin testing

C) you can cut 25mcg in half and take 12.5mcg daily

Cut with pill cutter or sharp craft scalpel

Get weekly pill dispenser to store cut half in

fanover profile image
fanover in reply toSlowDragon

I have a telephone consultation with my GP next week so will ask. I can’t say I’ve noticed any change in my general health whichever brand I’m on but I’ll take more note now.

SlowDragon profile image
SlowDragonAdministrator in reply tofanover

Very unlikely that GP can test Ft3 but it’s the most important result

TSH is slow to change - but has pronounced diurnal variation …highest early morning

But Ft4 test measures how much levothyroxine you’re taking

So test 24 hours after taking 100mcg (rather than 125mcg)

If GP can’t/won’t test Ft3 off thyroid antibodies test privately

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