Thoughts on Iron results please: Hello, Still... - Thyroid UK

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Thoughts on Iron results please

GreenTealSeal_ profile image
3 Replies

Hello,

Still can’t tolerate any thyroid meds so not having a fun time however I’ve been working on my iron levels.

Do these look better? At the moment I’m taking 4 three arrows pills a day.

Wondering if maybe I should cut back a bit now and take less?

I always struggle to understand the bits aside from iron and ferritin🫠

Thanks GTS

My CRP and hsCRP are always abnormal now so not even sure what to do about that.

Was thinking I may bite the bullet and try and arrange a synacthen to properly check adrenals but worried about cost… :/

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GreenTealSeal_ profile image
GreenTealSeal_

Tagging FallingInReverse and humanbean who are always so knowledgable about this stuff!! Hope that’s ok and thank you!

J972 profile image
J972 in reply toGreenTealSeal_

Hiya, I’m not going to comment on the iron results if that’s ok but I just wanted to ask what sort of amounts of levo it is you’ve tried? By that I mean, did you start mega low? Like 25mcg or even less.

GreenTealSeal_ profile image
GreenTealSeal_ in reply toJ972

Hello! That's ok, no worries!

Yeah I spent a year (nearly 2 years ago now!) just trialling levo. I started on 25mcg for 6 weeks, then 50, then 75- higher the dose the worse it got and 25 was already pretty bad! Last year I was determined to try again and even started on 12.5 but the same thing happened :( Levo also seems to screw up some of my other hormones which then have a significant impact on my functioning etc and it only gets worse the longer/higher the levo dose.

A Dr also advised t3 only but I could only manage this for 2.5 week as the effects were even worse than the levo!

Tried combo too but its the same and half a grain of NDT too- it's all the same sadly :(

Oh and I've trialled every brand too...I feel like I've tried everything so could defo use the help of a knowledgable(!?) endo to help work it all out as I have other endocrine issues that are arguably not well managed.

I couldn't work that year cos it made me feel so awful and I'd constantly have these episodes of going semi conscious, completely white and feeling faint/weak. It appears a bit like I'm drunk if you didn't know what was going on!

Sorry for the long reply but it's hard not to feel incredibly fed up at this point!

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