Hashtoxicosis? Been hyper for a few months now and feeling awful…

[PugMama78]

Hello all,

At the end of January I did private blood testing with medichecks which revealed suppressed TSH and very elevated free t’s. I stopped my levothyroxine (I had only been on 50mcg for a month or so prior to getting these results) and waited quite a few weeks before restarting at just 25mcg every other day as I was feeling scared from such high results and wanted to take it super slow. By last week I was feeling awful… I hadn’t slept properly in weeks, my heart was racing and I felt extremely anxious and shaky. I went to see my doctor as I was so exhausted and they decided to do some blood tests, including my thyroid. I have pasted the results below. My free t’s as you can see have continued to soar, and I’ve barely been taking any levothyroxine. I actually ended up at the hospital on Tuesday as I was feeling so unwell and they took some additional blood to test for graves. The TSI test came back yesterday and looks to be in normal ranges. I feel in complete despair. From being mildly hypo with symptoms and only being treated with a very small dose of levothyroxine for a few months I have now become extremely hyper. I was reading about hashitoxicosis and was wondering if this is the same as a hashi hyper swing or is this something much more extreme?

In the meantime I have stopped taking any levothyroxine of course, and have been prescribed beta blockers while I await a referral to an endocrinologist again. I’ve never felt so unwell and in despair. Has anyone on the forum had a similar story and be able to give me some advice or peace of mind?

Thank you in advance for any help/advice you could give me ❤️

Results from March 10th:

TSH 0.03 mIU/L (0.35 - 5.50) -6.2%

Free T4 (fT4) 42.3 pmol/L (10.5 - 22.7) 260.7%

Free T3 (fT3) 13.5 pmol/L (3.5 - 6.5) 333.3%

T4:T3 Ratio 3.133 

Thyroid Peroxidase Antibodies (TPO) 1300 IU/mL (≤ 60)

Folate - Serum 10.05 ug/L (≥ 4.12)

Vitamin B12 467 nmol/L (211 - 911) 36.6%

Vitamin D 96.3 nmol/L (≥ 30)

Ferritin 69.7 ug/L (10 - 291) 21.2%

Thyroid Stimulating Immunoglobulins  0.10 Iu/L (≤ 0.56)

[tattybogle]

yes hashitoxicosis is the medical term for hashi's hyper swing .same thing.

not surprised you feel lousy with those T4 /T3 levels .. hopefully now you've stopped adding any levo and are taking beta blockers you will start to feel a little better quite soon.

[PugMama78 in reply to tattybogle]

Thank you tattybogle ❤️

The propranolol is making me feel quite out of it and it’s been hard at work. I do hope this settles down soon.

[tattybogle in reply to PugMama78]

i've just pulled rank on my adult daughter and told her to tell her boss she's having 2 weeks off to look after herself cos her mum said so .. do you want me to write a note for you while i'm at it

[PugMama78 in reply to tattybogle]

Yes please! Thank you… that’s the first time I think I’ve smiled all day 😊

[tattybogle in reply to PugMama78]

ok , it's done,

now go to bed , it's past your bedtime .. and no reading under the covers

[PugMama78 in reply to tattybogle]

Yes boss! And thank you… so much 🤗