Most recent blood results : I've been in hospital... - Thyroid UK

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Most recent blood results

Helly75 profile image
13 Replies

I've been in hospital again since Wednesday feeling very unwell with what looks like some random symptoms. My T4 is 17.7

TSH is 7.07

I'm absolutely miserable ( what's new) but have my first endo appointment on Tuesday ,not sure how I should be feeling with those numbers ?!

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Helly75 profile image
Helly75
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13 Replies

Can you edit the above with ranges?

Helly75 profile image
Helly75 in reply toFallingInReverse

They never give ranges here ,annoyingly

helvella profile image
helvellaAdministrator in reply toHelly75

If you search for the pathology laboratory you might well find the references ranges readily accessible. Quite often "Somewhere hospital pathology handbook" will find the information.

If not, phone them and ask.

You have EVERY right to them. The results mean little without ranges.

SlowDragon profile image
SlowDragonAmbassador

previous post 2 months ago

healthunlocked.com/thyroidu...

High TPO antibodies confirms autoimmune hypothyroid disease - also called Hashimoto’s

TSH was 13 two months ago

TSH 7 now

Two separate tests with TSH over 5, and symptoms, and especially with high thyroid antibodies you should be started on levothyroxine

Starting levothyroxine - flow chart

gps.northcentrallondonccg.n...

Because of your medical history starting on 25mcg Levo

Retest 2-3 months later

Are you lactose intolerant or on dairy free diet

If yes you need LACTOSE FREE levothyroxine

Best option is likely Vencamil levothyroxine

Request

Coeliac blood test if not been tested

Retest vitamin D as likely on inadequate dose vitamin D

B12, folate and ferritin all inadequate or deficient as detailed in previous post 20 days ago

Iron 12.7umol/l

Serum ferritin 23 ug/l

Ferritin is deficient

Has GP done full iron panel test for anaemia

Request endo do so

Or test yourself as detailed in previous post

Folate 3.3 ug/l

B12 366 ng/l

are you self supplementing B12 now

After a week on just separate B12 add in a separate vitamin B complex

As detailed in previous post

Retest vitamin D yourself here

NHS easy postal kit vitamin D test £31 via

vitamindtest.org.uk

and most importantly take a supportive (preferably male) witness with you

Helly75 profile image
Helly75 in reply toSlowDragon

Just got some more bloods back B12 247 ( 197-771)

FOLATE 5.6 ( 3 - 26.8)

T4 18.1 ( 12-22)

TSH 6.3 ( 0.27- 4.26 )

CORTISOL 45 , no range given

SlowDragon profile image
SlowDragonAmbassador in reply toHelly75

What time was test done?

TSH over 5

Cortisol possibly extremely low ….obviously impossible to say without range

Folate inadequate

B12 very inadequate

Medics will say these are “fine” as within range

Down to you to self supplement

No vitamin D test result

Organise your own retest of vitamin D

No iron panel or ferritin

cks.nice.org.uk/topics/anae...

Serum ferritin level is the biochemical test, which most reliably correlates with relative total body iron stores. In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing.

It’s possible to have low ferritin but high iron

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

If taking any iron supplements stop 3-5 days before testing

Medichecks iron panel test

medichecks.com/products/iro...

monitormyhealth.org.uk/anae...

10% off code here

thyroiduk.org/testing/priva...

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

SlowDragon profile image
SlowDragonAmbassador

High TPO antibodies

You should have coeliac blood test done BEFORE you consider strictly gluten free diet

as per NICE Guidelines

nice.org.uk/guidance/ng20/c...

1.1 Recognition of coeliac disease

1.1.1

Offer serological testing for coeliac disease to:

people with any of the following:

persistent unexplained abdominal or gastrointestinal symptoms

faltering growth

prolonged fatigue

unexpected weight loss

severe or persistent mouth ulcers

unexplained iron, vitamin B12 or folate deficiency

type 1 diabetes, at diagnosis

autoimmune thyroid disease, at diagnosis

irritable bowel syndrome (in adults)

first‑degree relatives of people with coeliac disease.

SlowDragon profile image
SlowDragonAmbassador

Your TSH is reducing

Ft4 isn’t very low at moment

Endocrinologist may want to wait and retest again in another 8 weeks before starting Levo

If you got all four vitamins to OPTIMAL levels you might well see thyroid levels improve

Certainly symptoms should improve with better vitamin levels, especially improving low ferritin and B12

And strictly gluten free diet might give significant benefits too

tattybogle profile image
tattybogle

are you still taking the steroids ? or have you tapered off yet... just mentioning it as i think ?steroids can have a lowering effect on TSH ,so bear that in mind when discussing TSH results with endo . ie . when off them, your TSH may rise again, and they may be partly responsible for it appearing to improve ( go down) in recent weeks. ... not sure if endo's are aware of this effect or not ...possibly not , but if they are i guess they may want to wait a bit longer to see what thyroid is doing once you've finished the steroids.

not sure how that helps , probably not at all , but just thought i'd better mention it in case it gets forgotten ..... really sorry you're having such a lousy time Helly , and i agree~ whoever is playing around with your voodoo doll should take a really long break , you 've had way more than your fair share of trouble already . ..sending a hug .

Astridnova profile image
Astridnova

Your T4 looks okay to me on the face of things. You need to know your T3, which is the active thyroid hormone. We are supposed to convert T4 to T3. You TSH indicates a lack of T3. Although TSH is a pretty inadequate measure of thyroid health, it looks like you are clearly deficient, even by that gross measure. Since you probably have enough T4, but are not converting it, you would need T3 supplements. These are hard to get. The best source is Natural Dessicated Pork Thyroid gland, sold in 'grains.' Depending on where you are located, it can be more or less hard to find a doctor to write a script for this. A starting point is to find a doctor who will actually measure your T3. The theory for these problems with doctors looking at your T3 is that when synthetic T4 (thyroxine) came onto the market, it was in commercial competition with dessicated pork thyroid (which contains T4 and T3), and big pharma pushed synthetic T4, enabling its dominance by recommending via captive laboratories, that T3 was only to be tested where TSH was really high. A lot of people can be T3 deficient and have normal TSH - but you don't so someone should be willing to test your T3. Many people take synthetic thyroxin but remain ill, ill but not listened to. Not so long ago a book by a thyroid specialist finally came out acknowledging this: Bianco, MD, Antonio C., Rethinking Hypothyroidism: Why Treatment Must Change and What Patients Can Do, University of Chicago Press. Kindle Edition.

Helly75 profile image
Helly75 in reply toAstridnova

I will do my very best to ask for some more bloods at my first endo appointment this afternoon, I'm not hopeful at all & struggling to even stay awake 🙃 I will make a new post when I get home & let you all know how it went ,thanks for the book recommendation x

Astridnova profile image
Astridnova

Good luck. B12 is very very important too, and iron, as others who read more of your posts have commented.

Helly75 profile image
Helly75 in reply toAstridnova

Yes my B12 seems to be dropping like a lead balloon- 247 at the minute but they say it's normal , I can hardly keep my eyes open & it's scaring me a wee bit

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