I’ve just collected my daughters blood results (the ones which led to her hyperthyroid diagnosis last week) from her gp after requesting they be printed.
I have no idea how to read them or have any idea what they mean (or which ones are the important ones). Please could someone help this newbie?
Perhaps begin by telling me which ones to list on here? I ‘think’ they show ‘full’ bloods but amongst other things like Liver function, Urea & electrolytes, vit B12, folate etc the only results for thyroid function listed are T4 level and TSH.
Thankyou and apologies for having absolutely no idea what I’m looking at/doing! 🙈
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Hyperthyroiddaughter
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Can you take a photo of the results and attach using the picture icon? If you need to add multiple photos, you need to ‘reply to your own post’ to enable members to see these.
Obviously members here have a wealth of knowledge on thyroid results and key thyroid vitamins, but we also have some members with wider medical knowledge who may be able to comment more widely.
Wow, that’s ALOT of information and advice there! Thank you so much! 🙏🏼 I can’t take it all in at this time of day I’m afraid, but I will definitely read and digest it thoroughly tomorrow!
However, re your point about the thyroid function results T4 and TSH NOT showing her to be incredibly overactive;
I did speak to a second GP (not the one who initially diagnosed my daughter) and they re looked at her results/notes and said that they actually thought their colleague had gone in too strong re dosage and advised my daughter to drop to 10mg dose per day for first week, then increase to 20mg after a week. Also that the levels weren’t as high as had been made out to my daughter, and not too far above ‘normal’ boundaries!!?
The doctor called her the day after her bloodtest to tell her that they had shown her to be ‘incredibly overactive’ and was prescribing her a daily dose of 30mg of Carbimazole to be followed with bloods again in 4wks and a follow up appointment. He gave her no details of the actual result numbers/ranges.
The above is an extract from your last post.
I’m presuming the test results posted today are your daughter’s second thyroid blood test results. Do you have access to the original test results, as would be useful to compare?
Thanks for the clarification. I was confused as I did not regard these as ‘incredibly overactive’
I would also upload other sections of the test if you are able. Having key vitamins optimal supports thyroid health.
I’m presuming no thyroid antibody tests were completed? If not, I would definitely push for this as a ‘next step’ (as outlined in your previous post). I say this because I was originally diagnosed as hyperthyroid with Graves BUT thanks to advice from members on this forum, I had antibodies tested and found I am actually hypothyroid with Hashimotos.
Has she started the carbimazole? Because with those results she is going to go very hypo very quickly! And that would not be good.
They do not seem to have tested any antibodies and you cannot diagnose hyper without those. I cannot imagine what is going on in her doctors head but she should be very, very wary of anything he says. He seems to be more than averagely ignorant.
Yes, she has started on Carbimazole and was initially prescribed 30mg per day but had extreme stomach pain after taking first dose, so I phoned GP surgery for advice. I spoke to a different GP who queried why her colleague had given her such a high dose. It was reduced to 10mg per day. She’s now been taking it since Monday. She’s still had lots of stomach pain (today VERY bad this morning) but appart from today, has been much less severe.
I must admit that I’m getting quite confused about it all atm. Could it just be that the Carbimazole is going to take time to start working (as others on here have suggested)? Or has she not been prescribed the right treatment?
Also, forgive me, but I’m not sure what to make of your advice/comments; ‘Has she started the carbimazole? Because with those results she is going to go very hypo very quickly! And that would not be good.’ ??
Should I be scared? Should she stop the Carbimazole? Are you suggesting that she shouldn’t be on it? Or def should be??
Being hypothyroid will cause poor gut function and low stomach acid
As her test results suggest she’s not hyperthyroid taking Carbimazole will quite likely result in hypothyroid symptoms and results
Suggest you get full antibodies tested AsAP
And see another GP or thyroid specialist endocrinologist
Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists
Ideally choose an endocrinologist to see privately initially and who also does NHS consultations so that might eventually transfer to NHS
That’s interesting, if a tad confusing especially because she’s taking Famotidine (to actually reduce stomach acid!) and has been for several months now, before her recent diagnosis of underactive thyroid!
She has more bloods (including antibodies I believe) at very beginning of April.
Carbimazole is an anti-thyroid drug. It stops the thyroid making thyroid hormone - completely. Her FT4 was only slightly over-range - certainly not hyper! Stopping the thyroid from making any more will cause the FT4 to drop quite rapidly. And we don't even know what her FT3 is!
I think her GP over-reacted due to lack of thyroid knowledge, and she probably is on the wrong treatment - IMHO. But to know if it's the wrong or the right treatment she should have tested the anti-bodies first to get a fuller picture. Until they are tested - or until the next blood test shows her to be very hypo - we cannot know if she should be on it or not. But, speaking personally, I wouldn't have started it until full testing had been done.
It's nothing to be scared of - neither were her original blood test results - they didn't put her in any danger - but it is something to get sorted rapidly because hypo symptoms are no fun.
Yes, I can understand you're lost. It's all a bit complicated at first. But her doctor should have known better and at least have given her a second test in a few weeks time to see if things had changed.
But now I'm confused! Because you say below that she previously had a diagnosis of hypothyroidism. Was she put on thyroid hormone replacement? If she was hypo then she cannot suddenly become hyper, it just doesn't work like that. An underactive thyroid cannot suddenly regenerate and start producing too much hormone. So it all rather sounds like Autoimmune thyroiditis. So, carbimazole would be the wrong treatment, yes.
And being hypo would account for the low stomach acid. The problem is that the symptoms are the same as high stomach acid. So doctors refuse to believe that low stomach acid is a thing, and always prescribe drugs that will lower the acid even further, making things worse. As I said before, doctors know next to nothing about thyroid and we should be very careful about their advice.
She needs her antibodies tested as a priority. If it were me, being as I am, I would probably threaten to sue that doctor if she didn't start doing things correctly, the right tests, etc.
Hey there again - I'm guessing you are in information overload -
These blood tests your daughter was diagnosed on show a slightly over range T4 and a slightly under range TSH - and do not, in themselves, shout or even whisper hyperthyroidism.
The antibodies need to be run first, before prescribing any drugs and usually - TPO - TgAB - ABs are run from this first blood sample -
is there any mention there of these abbreviations and with ranges and numbers alongside ?
if with Graves ABs Carbimazole is prescribed - if with Hashimoto's ABs this is not medicated :
Thank you for your reply 😊 Yes, I must admit that I am feeling very overwhelmed! I feel so very grateful for every reply with wonderful afvice that everyone on her posts. 💕🙏🏼 However, I feel a bit like with each one though (and so very new to all of this) I end up going down another rabbit hole and worry. I honestly do feel very lost with it all atm.
I understand what you (and others are saying and even I can see that my daughters results show her to be only just whisper indication of a hyperthyroid. So it certainly makes sense that (as I posted in a previous post) the second doctor that I spoke to,after my daughter began her initially prescribed 30mg dose of Carbimazole, did question why such a high dose and then advised she instead take only 10mgs.
She has done this and has her next (2nd) blood tests in about 3wks time. I believe they will include antibodies which haven’t yet been done.
Am hoping this will give us some more clarity/answers?!
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