My GP asked the NHS consultant to investigate my parathyroid.. But the. Endo department refused.. gp feels I'm over medicating because ofan underlying condition.. Though he's working on the basis of the TSH being undetected.. But endo won't even entertain looking further into parathyroid as my calcium is now normal. They have washed hands and really just don't care.
I still have bradychardia but it's not as bad as it was.. I don't faint anymore.
I constantly have high alkaline phosphatase, and low white blood cell count and in so much pain.. I have rapidly spreading arthritis ( aswell as being diagnosed with fibromyalgia decades ago)... And now my shoulder bone is growing bigger of its own accord.. Which is very weird :@.. It's very confusing not knowing what is linked to the thyroid disease or not.
My new GP is very nice and kind, but does keep saying I'm over dosing myself on thyroid meds even tho t4 and T3 are within range, and that its going to kill me via heart attack or oesteoartris.... But then doesn't understand why my heart rate is low. ( surely the heart concern is caused by high thyroid levels causing trachacardia??)
He was shocked by my shoulder bone growing longer.. It's sticking right out now but I've noticed it growing bigger and abnormal over the last year. Gp referred to phisio and x ray. Seeing phisio today hope to get x ray report.
Now they won't test T3 on NHS and withdrawn my T3 meds.
Any insight into any connection between thyroid and bones much appreciated.
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MrsClanger
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I have high ALP and it’s frequently a sign of Osteoporosis (which I do have).
There is a view among medics that low/suppressed TSH causes Osteoporosis. It doesn’t! I was diagnosed with this condition long before I had thyroid issues or took thyroid hormones. Have you had a DEXA scan to eliminate that possibility?
You’ve got a few things going on here. Heart rate is often low when cortisol is low.
Do you know your Calcium levels? If you do, can you post them, along with your last Thyroid blood results?
You’ve spoken about Bradichardia (low heart rate) and tachycardia (high heart rate rate). Which do you have?
To just withdraw your T3 hormones without any proper diagnosis is crazy. Think GP is panicking. My GP says that I’m overmedicated purely on the basis of my suppressed TSH. It’s madness - particularly as I’ve had my thyroid removed.
So - blood test results and dose of Levo and T3 will be helpful. You’ll get lots of help and support here as I have done already
Hi. Thanks for reply. Yup it's insane.. No explanation from my doc or phisio why I'm getting osteoarthritis so bad.. Just that it's age related.. I asked if it's normal.. She said not really.. But no advice other than I'm weak as a kitten and need to strengthen my muscles.. It very painful to do the exercises they give me.
Cortisol.. 514 nmol/L
Range:133 - 537 nmol/L
Date:18 Feb 2025 08:32:00
Previous was high..
626 nmol/L
Range:133 - 537 nmol/L
Date:21 Mar 2024 08:45:00
They did a few cortisol tests.. But I'm told it's normal.
I had a dexa scan few years ago they said I have oesteopenina.. When I posted the results on the Oesteo forum I was told they were actually good.. No need to worry. But gp scaremingered me and said it's because of the surpressed TSH.
Serum adjusted calcium
Not tested last week..
Last test within range last time
2.43 mmol/L
Range:2.15 - 2.5 mmol/L
Date:10 Oct 2024 08:56:00
Although one previous test was a bit high.
2.57 mmol/L
Range:2.15 - 2.5 mmol/L
Date:31 Jan 2024 08:50:00
But endo says parathyroid not an issue as calcium would be higher.
Though I've read that's not always the case.
Parathyroid
4.8 pmol/L
Range:1.6 - 6.9 pmol/L
Date:10 Oct 2024 08:56:00
Recent TSH 0.01 as usual.
T4
16 pmol/L
Range:11.1 - 22 pmol/L
Date:18 Feb 2025 08:32:00
Ferritin
71 ug/L
Range:30 - 150 ug/L
Folate
12.5 ug/L
Range:1.9 - 25 ug/L
Date:18 Feb 2025 08:32:00
Vit D
57 nmol/L
Range:50 - 99,999 nmol/L
Date:18 Feb 2025 08:32:00
B12
574 ng/L
Range:197 - 771 ng/L
Date:18 Feb 2025 08:32:00
I did stop taking all my supplements a week before test to get a clear baseline.
I normally ( will resume) vit b complex with folate. Easy iron, vit d. K2 mk7. Zinc and magnesium.
My gp has been scratching his head about the alp, as I don't have oesteoperosis yet.. Maybe it's to do with the bone spurs and Degenerative disc syndrome?
It could be anything bone related - although interestingly, ALP is also connected to liver disease. Doctors rule that out by doing Liver Function Tests before they start to consider bones.
Thanks for sharing those results. You haven’t put ALP on there - unless I’ve missed it! How high is it?
I have osteoarthritis in hip and knee. Any inflammation from that usually shows up in ESR (inflammation marker) test.
If you had your DEXA scan a few years ago and were Osteopoenic, a lot can have changed. You may now have entered the next phase and be osteoporotic in either hip, lumbar spine or both. I’m surprised that your GP hasn’t referred you for another scan. Things change very quickly.
Do you take Calcium supplements as well / instead of Vitamin D / K2?
Think Endo and your GP could be missing the elephant in the room and you definitely need another DEXA scan.
Parathyroid issues are complicated. Sometimes normal calcium levels co-exist with Hyperparathyroidism. In this case though, parathyroid levels would be higher than those you were showing at last test. Perhaps another Parathyroid test would be in order too
Don't know if this is relevant to you, but my osteoarthritis came on with perimenopause and was treated by HRT ( the oestrogen part ). Not had any problems since starting oestrogen.
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