NHS Endo Appointment and Blurred Vision - Thyroid UK

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NHS Endo Appointment and Blurred Vision

DylanA profile image
11 Replies

Hi All

Well my long awaited NHS appointment was interesting! The Endo didn’t bother to do any bloods and basically agreed to prescribe T3 as long as I acknowledged the potential danger to my heart! I stopped taking my vitamins and magnesium a week before and experienced quite severe arthritic joint pain so was glad to get back on them.

I have been on T3 for nearly a year now and I can’t say I have felt much difference. My levels are all within range (will post updated results in the new year). In the meantime …. Has anyone experienced blurred vision taking Liothyronine? I only take 10mg so on a low dose.

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DylanA
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11 Replies
SlowDragon profile image
SlowDragonAmbassador

Get your eyes checked at optician

Thyroid

Sounds like your dose might need tweaking

How much levothyroxine are you taking

Which brand

Do you split your T3

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

T3 ….day before test ALWAYS split T3 as 2 or 3 smaller doses spread through the day, with last dose approximately 8-12 hours before test

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

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Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

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Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

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Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Only do private testing early Monday or Tuesday morning.

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test

If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal

Monitor My Health (NHS private test service) offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65

(Doesn’t include thyroid antibodies)

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10% off code here

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Just TSH, Ft4 and Ft3 test - £32

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10% off code here

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Randox FULL thyroid test including both thyroid antibodies just £29

Test at home or in clinic

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DylanA profile image
DylanA in reply toSlowDragon

hiya.

I take 100mg Levo. (Almus brand.) plus I take 10 mg liothyronine both in the morning. Seem to sleep better if I avoid taking t3 at night. I get very tired in the evenings wanting to fall asleep by 7pm. I was hoping the t3 would help that.

SlowDragon profile image
SlowDragonAmbassador in reply toDylanA

How much levothyroxine were you taking before T3 was added

What were last Ft4 and Ft3 test results

Bloods should be retested regularly, especially when first adding T3

Do you test as recommended splitting T3

is your T3 a 10mcg tablet. If so, day before test ….split as 5mcg waking, 2.5mcg mid afternoon and 2.5mcg at 8pm

DylanA profile image
DylanA in reply toSlowDragon

latest results:

T3 6.1 pmol/L

T4 19.7 pmol/L

Levo dose before adding T3 was 75mg

My liothyronine tablets are 20mg so I have to cut them in half to take 10mg per day.

in reply toDylanA

Do you have the ranges?

Also if your thyroid levels are off it can affect your vision. When I was really hyper I had double vision and dry eyes so I used sone eye drops to lubricate my eyes

DylanA profile image
DylanA in reply to

Hi

T3 range 3.1 - 6.8

T4 range 12 - 22 pmol/L

So both within range.

Lolota profile image
Lolota in reply toDylanA

Hi, you have to put your results plus the range of each.

DylanA profile image
DylanA in reply toLolota

Yes I have already.

Thank you

in reply toDylanA

Yes they are get your eyes tested

redhead41 profile image
redhead41

My daughter was very tired on 150mcg levo so Endo agreed to add 20mcg t3. He did say not to take it at night. On advise from the group she started with 5mcg in the morning then added another 5 mid afternoon. This was quite good but still fatigued for So she added a third dose late morning. 6 months ago she found she was asleep at 6pm so has now settled on 5mcg at 6am, 10mcg at 11am and 5mcg at 4pm. She has 20mcg tablets which she splits with a cheap pill splitter. She takes this with 125mcg lebo. This regime seems to suit her and she is able to fit it all in with her supplements and keeping away from food etc. Hope this is helpful.

Alilev profile image
Alilev

Have you had your B12 levels checked? I had blurry vision in one eye which cleared up with regular B12 injections. I also have hypothyroidism and it seems there are many links and overlaps in symptoms with B12 deficiency.

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