Endo appointment

[Dollc86]

Hey guys.

I have finally got to see an endo. He was very nice and understood and listened to everything I said. So with my gp refusing to give me more levo for months was because my levels were 'within range' was 75mcg since September last year. Last week gp called to say I'm slightly hypo again tsh jumped from 3.80 to 7.9. Went to the endo and he reckons it was covid even though wasn't even sick with it, caused all of this he said I need to go on 100mcg immediately and come back in 4 weeks to get bloods and see where I am then, he said depending on my t3 he may put me on both levo and some t3 meds. He said there are alot of people presenting to him with this kind of problem after having covid. He said there is a bit of work in it but hopefully it will all come right. I really hope so the last year has been the worst of my life, He told me the ranges the labs were sending were off and he wants me to be within 0.1 and 2.5. Had anyone had similar?

[serenfach]

Sounds like your Endo knows his stuff - hang on to him! Your GP does not have a clue - TSH of 7.9 is not "slightly hypo", it is your body shouting for more thyroid medication! The TSH should be below 1 if you are on Levo! (there are many threads on this here).

Let the Endo blame Covid if it gets you feeling better. It sounds like it the Endos way of saying your GP is wrong without saying your GP is wrong!

I hope the increase dose helps. Personally I found adding T3 was a life changer, but we are all different. Good luck!

[AuthorJAR]

my tsh free t4 is .99 Is that okay? I am so tired I can hardly drive or function! Thyroxine 100, and I am dizzy. They sent me to PT for vertigo?? I think its the levothyroxine.

[SeasideSusie Remembering in reply to AuthorJAR]

AuthorJAR

Please make a new post of your own to ask your question, piggy backing on someone else's thread doesn't work well, more people will respond if you make your own thread.

To be able to comment we need to see results for a full thyroid panel

TSH

FT4

FT3

and include the reference ranges as these vary from lab to lab so we must have them to be able to interpret your results.

Tell us when you took your last dose of Levo before the test, it should be 24 hours before blood draw to avoid a false high or false low FT4 result. The test should also be done early morning, no later than 9am, with nothing but water beforehand to avoid any food or drink affecting TSH level.

Also mention if you've had antibodies tested and whether you have Hashimoto's.

It's always useful to include full test results for key nutrients too, these need to be optimal for any thyroid hormone to work properly, low levels of deficiencies in nutrients can have symptoms which overlap with symptoms of hypothyroidism.

[AuthorJAR]

Sorry, I thought I did. Today was my first post I'm learning to navigate this site

[pennyannie in reply to AuthorJAR]

Hello Author and welcome to the forum ;

You need to start your own post and then we can help you better - just go back to the beginning - or press the More Icon top right on this page and go to your Profile Page - and then start your own question about your own situation.

Or just press on your face above where you started writing and you should get to the same place.

Just read that you have had a thyroidectomy and am sure we can help you in your own right.

This is a patient to patient forum and if you start your own post forum members who have experienced similar will be there to support and advise you too, back to better health.

[tattybogle in reply to AuthorJAR]

AuthorJAR ... don;t worry , we've all been there

To write a 'new' post~ look for a blue box at the very top of this page saying "Write" (it has a picture of a pencil) .... click on that blue box .

or:

look for "My Feed" (also at top of page) Click on that, then look for "What's your question ?" at top of page.

[humanbean]

He told me the ranges the labs were sending were off and he wants me to be within 0.1 and 2.5.

Was this the endocrinologist saying this? People (including doctors) can't just decide which reference range they want to use with test results, the only valid ones are the ones that came with the tests.

What is true is that if a TSH test has a reference range of 0.5 - 4.5 (for example), doctors can decide that they are only happy with a result close to the top of the range, mid-range, or close to the bottom of the range. So patients are told they are fine if their TSH is within range - anywhere in range - and that a result of 0.5 is as good as a result of 4.5. This is nonsense.

For patients there is a MASSIVE difference in how well they feel when having a result of 0.5 or having a result of 4.5. They simply can't be compared in terms of "wellness".

The TSH levels you quote (3.8 and 7.9) are both far too high for the majority of people with hypothyroidism to feel well. You might find this of use :

web.archive.org/web/2004060...

[Dollc86 in reply to humanbean]

Hi Humanbean,

Yes it was the endo said this but maybe I'm saying it wrong, he said ideally he wants me between 1 and 2.5 because I kept telling my gp I felt awful and he kept saying I was fine because I was within range, well until it went to 7.9. Back on 100mcg now so hopefully I'm on the right road.