I was observed in Adenbrooks hospital 1994 as having a goitre. Put on levothyroxine ever since. Always cold, always tired easily. Always overweight. Year before last I discovered on utube, Dr ken berry, and Dr Unwin (liverpool) who advise a ketogenic diet. Felt improved, so moved on to carnivore only last year. Felt better, trying one drop of Lugol's 2% iodine now every other day, as this provides the daily RDA of iodine which I can never have had in my life !!!!!!? I have lost about 20 lb, but have gained some muscle. I can walk further than ever, am able to wake up earlier and go to bed later, I do lift some light weight about twice a week. I have a more positive outlook on life. I am 72 in march.
I have twice a year blood tests, Hba1c and Triglycerides are very low. Just had Cystatin c done, better figures than eGFR. NHS GPs do not test for T3 only TSH. So my TSH last year was v.hi. T4 and T3 v.lo.
This year TSH lower, T3 &4 getting towards middle range. So TSH is not shouting for more T4,
and thyroid gland is starting to cope. The thyroid itself is getting smaller, not so big and puffy, smaller nodules etc. I am not giving advice, just stating what I am doing for myself.
There are videos re Dr Kellog, Dr keays and the start of modern medicine with the Rothchild family that are worth a look. Good hunting Col.
How much IODINE is too much?? please see Dr ken berry :-
just adding this so future readers are aware of the potential issues with supplementing Iodine : healthunlocked.com/thyroidu... /iodine-a-collection-of-useful-information-because-the-search-facility-on-health-unlocked-is-totally-pants
if my maths is correct , 1 drop lugols 2% = about 2.5mg iodine .
which is 2500mcg
the RDA for iodine is about 150mcg .
plus , if taking levo , this already gives you a certain amount of Iodine daily . eg 100mcg Levo has about 63 mcg Iodine in it .
RDA will prevent goitre, but is not ideal as every cell in the body has an iodine receptor, not just the thyroid. See Dr brownstein with Dr ken berry, it is eye-opening. So many people have had a miserable life keeping to the RDA.
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This year TSH lower, T3 &4 getting towards middle range. So TSH is not shouting for more T4,
Welcome to the forum
How much levothyroxine are you currently taking
Do you always get same brand
Please add actual results and ranges
VERY important to test TSH, Ft4 and Ft3 together
aiming for Ft3 at least 50-60% through range
Often Ft4 (Levo) will need to be a bit higher
Vitamin levels
Also extremely important to test vitamin D, folate, B12 and ferritin at least once a year
Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease
Lower vitamin levels more common as we get older
For good conversion of Ft4 (levothyroxine) to Ft3 (active hormone) we must maintain GOOD vitamin levels
What vitamin supplements are you taking apart from iodine
Iodine not recommended as Levo contains all the iodine you need
suggest you get iodine levels tested - see info below
Autoimmunity
Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)
NHS only tests TG antibodies if TPO are high
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
How to test
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
Every thyroid hormone contains iodine. T4 is just over 63% iodine by weight; T3 is almost 57% iodine by weight.
It is not iodine added to desiccated thyroid!
But desiccated thyroid will also contain some iodine that has been taken up from the bloodstream but not yet used to make thyroid hormones. The amount will vary at least a bit.
You cannot know where you are without testing. But testing only gives you a snapshot, and is quite expensive.
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