Un known cause of tremors linked to?: So i'm peri... - Thyroid UK

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Un known cause of tremors linked to?

Di01 profile image
Di01
17 Replies

So i'm peri menopause with fnd i've started getting tremors i've read that it could be related to menopause tgyroid and fnd it was my first tremors all over im not on meds so its not a side effect cant put my finger on it as in which could be the cause it really scared me and after my body had the tremors it left me like pins and needs or some odd sensation in my arms and legs my and i didnt want to move i now dont want to be left on my own really hard having something like this and cant pin point to which it could be!..so tired in myself not sure if this is also relavent but tinnitus in ears and pain in middle of breast bone all day plus pain stabbing on the side of right ribs breathing in and its a sigh its like a fish that needs water..

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Di01 profile image
Di01
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17 Replies
tattybogle profile image
tattybogle

Hello ,Have you had a thyroid blood test ?

SlowDragon profile image
SlowDragonAdministrator

Ask GP to test thyroid including thyroid antibodies and vitamin D, folate, B12 and ferritin

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12 at least once

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. Both are autoimmune and generally called Hashimoto’s.

In U.K. medics never call it Hashimoto’s, just autoimmune thyroid disease

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease). Ord’s is autoimmune without goitre.

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s.

Gluten intolerance is often a hidden issue too. Request coeliac blood test BEFORE considering trial on strictly gluten free diet

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

Di01 profile image
Di01 in reply to SlowDragon

Hi how do these work the nsh test do i have to visit a lab or it it just like a finger prick ? had these test done back in march and dr wasnt concerned but i will get my own done now

SlowDragon profile image
SlowDragonAdministrator

Tinnitus often linked to low B12

Tight chest, and breathlessness low iron or ferritin

Di01 profile image
Di01 in reply to SlowDragon

Hi thanks asked the dr for some blood test hes going to do a full blood count but i dont see if this will help check in to thyroid issues maybe show iron levels xx

SecondAngel profile image
SecondAngel

Go to the GP on this one I think....

Cornwaller profile image
Cornwaller

Needs investigating. Could be b12. Google B12d.org. But as detailed above need range of tests to find cause or more likely causes.

Best wishes

Di01 profile image
Di01 in reply to Cornwaller

Thanks booked in now for full blood count via dr hope this helps rule out stuff going to try and book a private thyroid test via nhs xx

SlowDragon profile image
SlowDragonAdministrator in reply to Di01

See what GP tests first before booking any private testing

Several medications, especially antidepressants, can cause tremor.

Polaris profile image
Polaris

b12deficiency.info/signs-an...

The website above has excellent information with videos, one of which shows a case of wrongly diagnosed tremors (at the very end).

Research shows that 40% of those with thyroid disease will go on to have B12def./PA, and vice versa - three in our family have both (two confirmed by gene testing).

The first inkling I had of B12 deficiency began with tingling toes, relentless fatigue, balance and memory problems, difficulty finding words, etc.

It creeps up very slowly and is notoriously difficult to diagnose or receive adequate treatment for - the reason most of us self inject after doing the research.

Important not to supplement before testing!

It's also very common for symptoms to intensify during treatment with injections, but really important to persevere.

Best wishes finding answers, Di01

Di01 profile image
Di01 in reply to Polaris

Aw thanks i'm not sure what there linked with as i've got so much hoing on and read up that thyroid and menopause can cause tremors but ive also got fnd and that two has some issues with the nervous system hard to kno which one there linked to as ive only had tremors off meds b4 today when i was on some anti depressions for low mood & mood swings during this menopause then not long after started getting pains in hips legs and arms and forgetting things i kno menopause can cause a lot of sysmptons but jeez i've had every single thing going on from fatigue to memory problems 🤞 that i find out what these r linked to! Thanks for info take care now! X

SlowDragon profile image
SlowDragonAdministrator in reply to Di01

Hypothyroid often misdiagnosed as menopause

GP should test thyroid including thyroid antibodies

Di01 profile image
Di01

Going to look in to it just to be sure can and maybe rule it out ive got loads going on but i need to kno which thing is causing these or setting them off i'm so greatful for everyones advice on here but there is always a lot to take in the human body is so complicated so much to check hormones b12 iron thyroid the list goes on anyway i dont like moaning or ranting but i've had some great advice that i can take on board that id of not even of thought of so give me a bit of reasurances that i can go back to my dr snd say well can u check this for me! ..i hope ur well and thanks again for the advice take care!

in reply to Di01

Hello Di01 Re your symptoms- I’ve had exactly these and sympathise with you as it’s just an awful feeling and does make you feel out of control and frightened. I describe the odd sensation after pins and needles as an electricity in limbs like a fizzing. One of our members described as whooshing and I thought yes, that’s it! Like that feeling you get with a virus- parethesia I think it’s called??

I put these same symptoms down to menopause some 8 years ago and went on HRT. Had some relief then but then I was diagnosed with underactive thyroid 2 years ago and have had flair ups- periods of instability in levels that bring exactly these same symptoms on. As SlowDragon has stated, I think my meno symptoms were ‘misdiagnosed’ in hindsight as it was clearly my thyroid dysfunction but no doctor at the time thought to check those just issue HRT. I’m on a good prep of HRT and wouldn’t drop it just in case. Just know you are not alone. I get mine early morning in waking but have days full of it when my thyroid is ‘off’. In the day time I walk it off. Counteracts the feeling somehow. Not so easy at 5 in the morning though.

Good luck with the testing!

Di01 profile image
Di01 in reply to

Aw thank u and aw sounds like u had a rough time the menopause is hell without other added health conditions on top glad u got it sorted people suffer for yrs being misdiagnosed but its frustratin not feeling right think mines just now at the point of it doesnt want to move because it feels so crappy cant wait to see what they put it down to but first thing first blood test and see what they say and start ruling things ..u take care now!

in reply to Di01

Thank you 🙏 you too and fingers crossed for the blood tests x

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