Hello,
Thank you for the information yesterday. That was very useful. I have recently moved onto a boat and am hoping to avoid the constant anxiety of having to deal with new GPs and their general lack of specialist knowledge every time I need a new prescription so that is a great help!
It’s occurred to me that going private and taking a more active role in managing my hypothyroidism may mean I can do extra things that I can’t with the NHS.
For background, I was diagnosed as hypothyroid 20 years ago. After several years of presenting with tiredness etc and being told I was working too hard, was burnout and depressed (even though I knew I was not), I finally collapsed and was diagnosed. My TSH as over 12 by that time.
Historically I’ve found managing my TSH around 1 is optimal.
I’ve moved to different areas twice in the last 18 months and my new GPs have not been particularly active or helpful. The first reduced my Levo from 200mcg to 150mcg and failed to do a follow up test. My new one had my TSH tested as a new patient and waved it through at “borderline - no action” at 5.58, despite it having risen from the bottom of the range to the top since the medication change. Meanwhile, I slept from half six last night until half six this morning.
My T3 and T4 are not regularly tested, only TSH and my antibodies were never tested. It was assumed to be Hashimoto’s as I was 27 and there was no other explanation was the reason I was given.
I have been tested for Coeliac and it was negative. Was gluten free for many years before the test though so 🤷🏻♀️ but anyway gluten free worked but have found that I do even better on Keto.
It’s occurred to me that I should take a more active role with private testing etc as necessary so…what should I be testing to get the best picture of what needs to be done?
Really low TSH, continuing hair loss, endo wants to lower my dose of Euthyrox from 100 to 75, what is happening?
NHS T3 Blood Testing.
Frequency of nhs testing?
Home testing.. Worthwhile or not?? 
🤷🏻♀️ Sudden jump up in T4
