I have Hashimoto’s and have had radio active iodine treatment over 16 years ago so have been on Levothyroxine since. I’m familiar with all the testing and get regularly tested by my GP. I also private test occasionally to check my T3 as my local area do not test that on the NHS.
I take my Levo religiously in the correct manner.
Last Sept, my T4 was higher than was optimal so they reduced me from 175mcgs to 150mcgs per day. Check up last week has shown my T4 has shot up very high and GP rang me as she was concerned.
I was out in traffic at the time and it was a bad line but I’m sure she said it was 29 and she was concerned about my TSH too. They have a new facility to contact the Endo Consultant directly for advice so I’m waiting to hear. But she immediately asked me to reduce to 100mcgs till I picked up my new prescription.
Any ideas on the cause of the sudden leap up? 🤷🏻♀️. Could explain why I have felt breathless some days, out walking the dog.
Thank you in advance for responses 😉
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Aslangal
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In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and separate B12
No idea about breathlessness. How are you generally ?
Doctors should be asking about symptoms not just using blood numbers ?
I would ask them to retest the bloods, it's one result ?My blood results from doctor are finally on app on phone and I do not have to send a form in everytime to get them. I am getting round to saying ask them for blood results and the ranges.
Do you take a B complex with Biotin / vit B7 - this can alter the blood results.
When was blood test done - advice on here is 9AM / no levo for 24 hours
How long have you been on 175 mg ? Any change in brand ? Do you take with water and nothing else. Have you changed anything other supplements or meds that could have been stopping you absorb the levo ?
Or has you stomach improve and it is taking in more of the levo these days ?
Thanks. No biotin. No Levo day of testing. Yes I take it with a full glass of water and nothing else for an hour. I actually feel good. I was shocked when she called me. Take Vit D mouth spray.
Sorry missed some of your questions … their opening question was ‘Do you feel alright?’ Before they told me T4 went up. No change in supplements. Was on 175mcgs for a long while - 2 yrs? Yes take with glass of water an hour before food.
Glad you are feeling good. I would stick not twist and reduce dose. Inexpert view.
Slow dragons advice on low iron is interesting and info wonderful as usual ... we are lucky. Also said get some new blood results.
Do you have blood pressure machine? I think I paid 30 for an Omron one some years ago. Tell doctor your heart rate and pressure, to help them feel less nervous.
Sorry for delay. Just over 16lbs. Not a massive difference suddenly.
Coincidentally, I had a 6 month review last week, from a Randox Women’s Health check I took in August 23. I got the full report late last night:
TSH: 0.23 mlU/l
T4: 30 pmol/l
T3: 4.68 pmol/l
Anti TPO: 16 ku/l
Thyroxine binding globulin TBG: 18.86 ug/ml
Anti TG: very high at 639 IU/ml
Ferritin: Very high at 241.59 ug/l (it was 164 in Aug 23)
Insulin low at 14.2 pmol/l
It’s a 46 page report. I’m seeing GP tomorrow anyhow so will take it in. They’ve flagged ‘red’ areas of concern mainly liver and hyperactivity of the thyroid which I obviously know but querying cause. Functioning or non functioning rather of the pituitary gland is mentioned 2-3 times as possible cause. Liver function concerns. My blood pressure was up a bit and my pulse rate low.
Vit D was 96 and B12 725.
Other than that - other readings were optimal in other areas! 🤣
Thank you for your incredible patience while you have been awaiting the outcome of our ferritin reference range review. We conducted this with Inuvi lab, which has now changed the reference ranges to the following:
Females 18 ≤ age < 40. 30 to 180
Females 40 ≤ age < 50. 30 to 207
Females 50 ≤ age < 60. 30 to 264l
Females Age ≥ 60. 30 to 332
Males 18 ≤ age < 40 30 to 442
Males Age ≥ 40 30 to 518
The lower limits of 30 are by the NICE threshold of <30 for iron deficiency. Our review of Medichecks data has determined the upper limits. This retrospective study used a large dataset of blood test results from 25,425 healthy participants aged 18 to 97 over seven years. This is the most extensive study on ferritin reference ranges, and we hope to achieve journal publication so that these ranges can be applied more widely.
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Blood Test results when on a trial of T3/T4 ?
Can I decide whether to go up on meds with only a TSH reading (GP won't do T4, T3)?
Please help- thyroid results- normal TSH low free T3 and free T4
T4:T3
Endo had finally had finally decided to try me on low dose t4
