I’ve just had this letter from the NHS endocrinologist who hasn’t seen me yet This is based on my last blood results which were
tsh 0.05 (0.27-4.20)
T4 25. (12-22)
T3 5.8 (3.1-6.8)
TGab 301 <115
TOAab 250 <34
Symptoms: palpitations, tachycardia, hand tremor, uncomfortable swallowing and hoarse voice.
Would you all accept this or press my GP for more?
previous post here
healthunlocked.com/thyroidu...
You were getting full thyroid and vitamin testing done by BH
Please add results
Your antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
A trial of strictly gluten free diet is always worth doing
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines
nice.org.uk/guidance/ng20/c...
Or buy a test online, about £20
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
chriskresser.com/the-gluten...
amymyersmd.com/2018/04/3-re...
thyroidpharmacist.com/artic...
drknews.com/changing-your-d...
Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease
pubmed.ncbi.nlm.nih.gov/296...
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
nuclmed.gr/wp/wp-content/up...
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
restartmed.com/hashimotos-g...
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial
With loads of vegan dairy alternatives these days it’s not as difficult as in the past
Post discussing gluten
healthunlocked.com/thyroidu...
Recent research in China into food intolerances with Hashimoto’s
healthunlocked.com/thyroidu...
Thanks for responding. I did an allergy test for all manner of things (fish, dairy, wheat, pets!) with the hospital. All were negative. Being allergic is no different to it triggering an immune response to ramp up Hashimotos??
I just don’t understand what the endo means by saying Hashimotos needs no intervention?? I clearly don’t need additional thyroxine but a scan would be helpful or a TRab to rule out Graves, no?
Being allergic is no different to it triggering an immune response to ramp up Hashimotos??
Having Hashimoto’s causes inflammation
Dairy and gluten are inflammatory
It’s always worth trying dietary changes
a scan would be helpful or a TRab to rule out Graves, no?
Yes
I just don’t understand what the endo means by saying Hashimotos needs no intervention??
The only treatment offered is to replace thyroid hormones once levels begin to drop
Hoarse voice is definitely a symptom of an underactive thyroid. See the Thyroid UK website for a list of the many possible symptoms.
thyroiduk.org/signs-and-sym...
When I had swallowing problems I was sent to hospital where they did a gastroscopy and found an inflamed oesophagus and a hiatus hernia.
Referral to ENT sounds like a good idea. They probably know more about the thyroid than your endo does!
Hello Woman,
Yes, I'd go back to the GP and ask to be referred to Endocrinology.
I have Hashimotos and successive the GPs failed to diagnose it. It only showed as "borderline" when I barely had the strength to leave the house.
My symptoms were the same as what you've described. I had a very dry throat and to do any activity like housework I had to keep drinking water frequently.
I had so many other symptoms too: back pain, pain in my forearms, stys in my eyelids, terrible dry hair and skin, feeling cold all the time but sweating at night, feeling so tired but not being able to sleep at night.
My TSH results never showed a true picture of how poorly I was.
You need to see a good Endocrinologist face to face.
Good luck and best wishes,
Stickybiscuit
Do I really need a biopsy?!
Do I need a dose increase?
Do I need a prescription... ?
New here do I need medication
Advice need before I see an Endocrinologist 
