New here do I need medication: Not yet diagnosed... - Thyroid UK

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New here do I need medication

Sasha789 profile image
12 Replies

Not yet diagnosed thankyou

TSH 58.5 (0.2 - 4.2)

Free T4 10.1 (12 - 22)

Free T3 3.2 (3.1 - 6.8)

Thyroid peroxidase antibodies 904.3 (<34)

Thyroglobulin antibodies 375.5 (<115)

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Sasha789 profile image
Sasha789
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12 Replies
greygoose profile image
greygoose

You most certainly do! Take these results to your doctor as soon as you possibly can. You must feel dreadful!

Clutter profile image
Clutter

Welcome to the forum, Sasha789.

You are overtly hypothyroid and need Levothyroxine to raise your FT4 and FT3 and reduce your TSH.

The goal of Levothyroxine is to restore the patient to euthyroid status. For most patients that will be when TSH is 0.2 - 1.0 with FT4 in the upper range. FT4 needs to be in the upper range in order that sufficient T3 is converted. Read Treatment Options in thyroiduk.org.uk/tuk/about_...

Thyroid peroxidase antibodies are positive for autoimmune thyroid disease (Hashimoto's). There is no cure for Hashimoto's which causes 90% of hypothyroidism. Levothyroxine treatment is for the low thyroid levels it causes. Many people have found that 100% gluten-free diet is helpful in reducing Hashi flares, symptoms and eventually antibodies.

chriskresser.com/the-gluten...

thyroiduk.org.uk/tuk/about_...

jimh111 profile image
jimh111

Yes. Did your doctor not do a thyroid test? Your B12, D, ferritin, folate are also low (your other post) and should be supplemented also. These are often low in hypothyroids and may improve with thyroid treatment.

Sasha789 profile image
Sasha789 in reply tojimh111

Thankyou no the doctor did not run the thyroid blood tests I posted the ones above are private but I had 3 done by the doctor which showed TSH going up and down

even though I had symptoms the doctor sent me away with antidepressants

jimh111 profile image
jimh111 in reply toSasha789

You have autoimmune hypothryoidism as indicated by your TSH, fT4 and anntibody levels. As the antibodies attack the thyroid it gradually fails but can release spurts of hormone leading to irratic hormone levels. We can see this in the varying TSH levels. Unfortunately the labs will only do an fT4 assay for a GP if the TSH is out of its reference interval. Had your GP been given the fT4 figures your situation would have been easier to spot. GPs also have difficulties requesting antibody counts, they are discouraged from requesting them. However, giving you antidepressants is inappropriate, if they felt your situation was that bad they should have asked for further tests or referred you to an endocrinologist.

Make sure you get a prescription for levothyroxine. Since you have high antibody levels your hormone status may well fluctuate, meaning you may be a bit hypo one week and a bit hyper the next. This will go on for quite some time (many months, a year or two???) but will eventually settle down. You will need to take levothyroxine for the rest of your life but don't worry it is not a drug, it is simply replacing the hormone your thyroid produces.

Once you receive your prescription you become eligible for free prescriptions, you will need to ask your doctor for a prescription exemption form which you fill in and send off. You will then receive an exemption card in the post.

Sasha789 profile image
Sasha789

Nov 2016

TSH 6.2 (0.2 - 4.2)

FREE T4 15.7 (12 - 22)

Jan 2017

TSH 3.3 (0.2 - 4.2)

Feb 2017

TSH 0.79 (0.2 - 4.2)

Then the above ones done in August 2017

TSH110 profile image
TSH110

That's awful Sasha789 I had short bouts of hyperthyroidism but mostly I was hypothyroid. It was not picked up but antidepressants were foisted upon me instead. I became dangerously ill with overt hypothyroidism so you must see a good doctor to get treatment with thyroid hormone replacement therapy. I'd find another doctor - the one you have is negligent and his/her inaction is seriously damaging your health. You should be treated with a TSH that high , even 6.2 and 3.3 would make me feel very poorly, and you have antibodies. The hyper phases tend to be short lived. How do you feel? Pretty bad I imagine. I hope you get treatment very soon. You could ask to be referred to an endocrinologist - they are variable in quality but I had a good one at Guys in London.

Katepots profile image
Katepots

Absolutely! Oh poor you those results are terrible, how on earth has the Dr let you get this bad.

You have auto immune thyroditis (Hashimotos)

Ideally you need to be gluten and casein (cows milk) free.

Definitely gluten though.

You need folate, ferritin, vitamin D and B12 testing as some if not all are likely to be low.

B12 needs to be over 600

Bit D 60-100

Folate/ferritin mid range.

You have so much inflammation going on you really need to sort gut.

Good probiotic will help.

You'll probably need to check adrenals, sex hormones down the line but I'd advise you get reading first, there's so much to learn.

Dr will put you on T4 only but if you don't get better on that (lots don't if you don't convert T4 to T3) you may need to add T3. Well highly likely being auto immune. Very common don't worry.

Read Dr Datis Khazzarian books he is amazing. His website is Dr K News

Dr Isabella Wentz Hashimotos protocol is easy to understand.

Chris Knesset website

Dr Weston Childs

Susan Blum md The auto immune recovery plan is a good book for diet info.

Check out itt campaign on Facebook. Do a request and come to the private one as well as public.

Lots of info on there.

So many people here can help too. Great site for help and advice. X

Katepots profile image
Katepots

Where are you in the country? There's a brilliant lady in the South.

You must take those results and wave them under your Drs nose.

Then change to a different Dr!

Sasha789 profile image
Sasha789 in reply toKatepots

I am from the south west of uk

Katepots profile image
Katepots in reply toSasha789

Oh me too 😀

The lady is in Reading but I can give you her contact.

She does advanced testing and uses labs in the states.

Look up the Dutch test

Also does a thyroflex test which is far more accurate at reading thyroid levels than bloods.

silverfox7 profile image
silverfox7

Lots of info on the Thyroid Uk site who run this forum as well. They are also recommended by NHS Choices for thyroid dysfunction.

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