Bone health, exercise and frailty: This is in the... - Thyroid UK

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Bone health, exercise and frailty

Regenallotment profile image
RegenallotmentAmbassador
24 Replies

This is in the Observer today too.

Dr Vonda Wright on bone health. I caught a podcast interview with her here. Her comments on frailty made me sit up and listen.

podcasts.apple.com/gb/podca...

Hypothyroidism gets a mention too about 3/4 of the way through.

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Regenallotment profile image
Regenallotment
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24 Replies
Bertwills profile image
Bertwills

Glad you highlighted this, it’s a good article. Shows how wasteful the NHS is really. Very few women are offered HRT even when their bones are shown to be weakened. Wouldn’t it be good if a Dexa scan was a standard test at a perimenopause stage & HRT offered early. Would probably save a great deal of money & pain.

I’ve started using a collagen which guarantees to strengthen bones. BoneBalance, expensive maybe but cheaper than a broken bone. I also try to ensure I take Vit D, K2 & magnesium. Maybe all those scare stories about taking high T3 have frightened me into it even though there’s no real scientific basis for them.

FallingInReverse profile image
FallingInReverse in reply toBertwills

I have had a dexa scan on my list. I should just ask for one shouldn’t I…

Bertwills profile image
Bertwills in reply toFallingInReverse

Yes! ASAP

FallingInReverse profile image
FallingInReverse in reply toBertwills

Alright then!

With my Ts now acceptable

I am moving in to the next things!

Is a dexa scan an in-office procedure? A special machine needed?

Bertwills profile image
Bertwills in reply toFallingInReverse

I don’t know, I’m going to google. I have an image of an x ray type machine but I think that’s probably wrong.🤞

FallingInReverse profile image
FallingInReverse in reply toBertwills

I will let you know : ) !

HandS profile image
HandS in reply toFallingInReverse

Dexa scan is done in hospital. You lie fully clothed on a bed while the machine head passes over your whole body. Only takes a few minutes.. The Operator is in the room with you .

It’s nothing like an x-ray, MRI or CT scan.

DippyDame profile image
DippyDame in reply toBertwills

As someone who relies on high dose T3-only I'm off the firm belief that if medics paid more attention to T3 levels from an early age then more health problems could be avoided.

The body produces it, the body needs it, deficiency causes ill health ....yet medics treats it like a life threatening drug

Why do I rant about T3 so often?

Experience! It's in my bio!

Because, I am now suffering from the damage done over decades, by low cellular T3, caused by a form Thyroid Hormone Resistance.

Please don't ask....you can look it up! Just don't bother asking a medic for advice/help.

Had I lived c +/- 16th century I would probably have been burned as a witch for using/ promoting such a treatment.

You will gather that I am far from happy - who is? - with the current state of thyroid care, and with the rediculous theories and scary stories that abound.

I fear this will continue until these beliefs are replaced with scientific facts....not likely in my lifetime!

Until then.....T3, like the witches and their remedies of yore, is likely to be relegated to "the flames", with much consequential suffering.

This.....in the 21st century.

Plus ça change....

Yes, I agree, it all shows how "wasteful the NHS is really."

FallingInReverse profile image
FallingInReverse in reply toDippyDame

It’s the unnecessary years of damage that really, sadly and with anger, get me too.

8 years of symptoms for me while I was running and training hundreds of miles a years for marathons and shorter races.

Yes, my current priority is finding my way back to some physical exercise that doesn’t boomerang.

So When I read people here are running and hypo I do wonder - did they never really crash, did they catch it soon enough where damage wasn’t too great to overcome… will I ever take a jog again without paying for it?!

I wish as many of us do that I had a history of FT3. they should put it on a standard CBC!

Regenallotment profile image
RegenallotmentAmbassador in reply toFallingInReverse

I hear you, I can’t run anymore (podiatrist told me I shouldn’t run another step) and that was actually one of the first signs before I was diagnosed. I would like to see if I can start again and get some sprints in. I have slowly slowly managed to build up some resistance weights. But … so much tendon trouble 😔

FallingInReverse profile image
FallingInReverse in reply toRegenallotment

Thank you for the reply

I am so deep in the 😔 around running right now!

I’ve got the walking and regular daily life activities ok. Although still might need a Levo increase too not sure.

If I could get out of my own way I’d start a simple weight training plan. Right now I think that is equal parts mind & body blocking me. I’m realizing Im a little shell shocked from the past 2 years since diagnosis.

DippyDame profile image
DippyDame in reply toFallingInReverse

....and as diogenes once told me, some of that damage cannot be reversed even with T3 treatment.

I'm not looking to go running....at 79 even a comfortable short walk would please me!!

I'm not ready (mentally) to sit all day in a chair, however, the brain says "Go" but the body says "No".

crystalcat10 profile image
crystalcat10 in reply toFallingInReverse

oh gosh I'm a runner , not marathons but a lot, and weights and hiit dont tell me i should stop . its one of the only things i seem to have in my control .

Regenallotment profile image
RegenallotmentAmbassador in reply tocrystalcat10

Definitely don’t give anything up if you can keep doing it, keep it going!!

Unfortunately some of us got injured before diagnosis and getting back to where we were seems virtually impossible. Some suffer with fatigue and post exertional malaise (PEM) which limits capacity despite the will/wish to run.

FallingInReverse profile image
FallingInReverse in reply tocrystalcat10

Can you tell me how long you were (in retrospect) symptomatic and undiagnosed?

As Regenallotment notes many of us dug ourselves quite a hole … as DippyDame notes there is indeed some damage that can’t be reversed and we all play that out for ourselves.

Wondering what your story has been, if you ever hit a wall, have you ever needed a break from exercise?

crystalcat10 profile image
crystalcat10 in reply toFallingInReverse

i was diagnosed 40 years ago and i was really bad , funnily enough the good old NHS

thought i was mentality ill and sent me to a psychotherapist who did blood test and found on the floor thyroid . she was actually a sports psychologist who worked with many local middle distance runners ( Steve Cram , et all ) as well as football clubs

she said running would fix everything so i trained for the great North Run . it hasn't fixed everything but like Forest Gump I keep going .I suppose it helps mentaly .

Sparklingsunshine profile image
Sparklingsunshine in reply toBertwills

The problem is, that imo the NHS is reactive, not proactive. They will patch you up if you break something and if you keep on breaking things might eventually get round to offering a Dexa. But by that time the damage is done.

The NHS needs to focus far more on prevention. Its all well and good treating people when they present with health issues but in many cases the best they can offer is some symptom relief and damage limitation.

We need to catch people early, before irreversible damage is done. Yes scanning women is expensive but they manage to offer other health screening programmes and how much does it cost them to repair broken bones?

TiggerMe profile image
TiggerMeAmbassador

Ideal, I'm on airport taxi duties today 👍

TiggerMe profile image
TiggerMeAmbassador in reply toTiggerMe

Well, that is quite a listen isn't it!

Regenallotment profile image
RegenallotmentAmbassador in reply toTiggerMe

What you have been banging on about for years 👏

TiggerMe profile image
TiggerMeAmbassador in reply toRegenallotment

I'm just back from my jog with first 30 second sprint... honestly in my head I was sprinting, I'm not sure my legs got the message but my lungs did🤣🥵

Regenallotment profile image
RegenallotmentAmbassador in reply toTiggerMe

Wooo that’s ace! Well done!!

RedApple profile image
RedAppleAdministrator

Thanks for posting this Regen, very interesting. I note that Dr. Vonda Wright, the orthopaedic surgeon interviewed in this podcast, has also made her research paper available for all of us to be able to freely download. tandfonline.com/doi/epdf/10...

Regenallotment profile image
RegenallotmentAmbassador in reply toRedApple

Yes, it’s very cool, she paid extra to make it free access and has discovered it has over 100,000 downloads when many don’t get more than a handful when behind a paywall. 👍

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