The Role of the Endocrine System in ME/CFS - Thyroid UK

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The Role of the Endocrine System in ME/CFS

mourneadventurer profile image
7 Replies

Podcast by DR Sarah Myhill youtube.com/watch?v=bDbdULh...

Dr Myhill talks about Thyroid Hormone Receptor Resistance.

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mourneadventurer
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7 Replies
shaws profile image
shawsAdministrator

I doubt that few doctors dealing with thyroid disease is aware that some people can have resistance to thyroid hormones.

Thanks for posting.

mourneadventurer profile image
mourneadventurer in reply to shaws

Hi Shaws,

thankfully since joining this forum and ThyroidUK I'd completed my diagnosis by exclusion. My bradycardia was/is thought to be totally unrelated!

A recent private T3/ reverse T3 ratio of 15.8 instead of above 20 gave me a big clue alongside my heart normalising after a 3 week course of antibiotics for yet another tick bite.

Recent cardiac MRI's and echocardiograms are normal so now back to the drawing board of reversing the symptoms of stealth hypothyroidism. The heart can only utilise T3.

Best Wishes

shaws profile image
shawsAdministrator in reply to mourneadventurer

One of our Advisers, deceased, was an expert on Thyroid Hormone Resistance and he used T3 only for his thyroid hormone resistant patients.

His other patients were prescribed NDT and he would never prescribe levothyroxine.

I had forever palps on levo and as soon as I took T3 only I haven't had any visits to A&E or palps. My whole body calmed down.

20Arranow profile image
20Arranow in reply to shaws

Yes, like in my Case.

mourneadventurer profile image
mourneadventurer

Yes discovering that I've got Thyroid Hormone Receptor Resistance has been enlightening. I'm still currently on a T4/T3 combo as agreed with my endocrinologist that might be up for debate in the future!

Green smoothies, epsom salt baths, magnesium malate and citrate have been essential as I try to unravel the years of chronic stealth hypothyroidism and suppressed immune system.

rebekah40 profile image
rebekah40

Thank you for posting :)

mourneadventurer profile image
mourneadventurer

Thanks Londinium for the link on this informative series. Just have to scroll down to Dr Myhill's section.

Best Wishes

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