Hi, my Dr has agreed to refer me to any uk endocrinologist as every time I try to exercise 4 months in I crash with pure exhaustion, depression low heart rate palpitations and weight gain. Can anyone recommend a good specialist please
Hypothyroidism and exercise: Hi, my Dr has agreed... - Thyroid UK
Hypothyroidism and exercise
I have had all those blood tests and they are all normal ... I am on vit D as that was slightly low , last time I had my bloods tested I didn't take my meds for 24hours and they were still normal! This is why she has agreed to refer me, she's a good GP and understands but is too scared to prescribe more thyroxine because of my blood results. She wants me to look for a specialist that may be a bit more lax and prepared to prescribe more despite my blood results, hence why I am asking for any recommendations.
Thanks for this information though x
If you post your actual results members can advise
We need levels to be right at top of ranges - not just any where within range
For example B12 range is about 210-760. GP would likely say result was normal it was 240 or 750.
Thankyou I don't have a copy of my results but will ask for a copy and post them next time I'm at GP x
You can phone and ask for a copy of your results to be left for you to pick up if you're not due to see your GP for a while?
Depending on the level of your training and fitness, I wonder if you need to look for an endocrinologist who specialises in Sports Medicine?
Is there such a thing ? I was running 2 4K and 1 8k a week as well as a high intensity fitness class, I ended up taking to my bed for 5 days and it took 2 months to fully recover
Yes - there's a phenomenon known as the Female Athlete Triad. There's some decent information about it in several posts on the blog:
Suppversity
There are Sports Medicine people who specialise in this tho' unless you're very slender or have relevant metabolic pre-dispositions then it's less likely that that volume of physical activity would overlap with this (as in it's lower than for athletes who are training for several hours a day).
ETA: (I have no association with Suppversity - I like the approach of the author who discusses research papers.)
If you email louise.roberts@thyroiduk.org.uk she has a list of Endocrinologists. I think your dose of hormones may be too low and as Hidden states, exercise depletes T3 and if you aren't on an optimum of thyroid hormones that is probably the reason you feel so bad.
Sounds all very worrying for me in the future as I love to weight train but obviously can't right now
I've actually had a good experience in an ex nurse and I've pushed my dr to give me high dose and vit D and she's worked with me... cracking the exercise will be my final step to good health... it's a long journey stick with it and be persistent xx
JoshRH I wonder if you might find some relevant or useful information on the blog
Suppversity
if you search for
thyroid
within that and read the posts. (I have no association with the blog - I like the approach of the author who discusses research papers.)
Hi there, So what should I search on Google, in confused, my thinking process isn't the best atm
Suppversity
If you Google that should take you to the blog (and/or FB page). And then you can search there. (NB, if you check your PMs here you might see a link.)
Just click on this link:
google.co.uk/search?q=Suppv...
Looks like quite a proportion of hits are on sites which require sign-up such as facebook and twitter.
Hi Edithrock55, I'm in a similar situation, my running is great for a couple of months, then there are weeks where I can barely do any exercise. I haven't had all the thyroid test yet though, so I'm hoping to get some answers at my next blood test. I really hope you find out what's causing it soon, as I know how frustrating it is not to be able to consistently exercise and get on with your day to day life.
Thankyou, yes it's very frustrating x
Have your reverse T3 levels checked. NHS won't do that so you'll have to do it privately. Medichecks did mine. High reverse T3 levels will block your T3 hormones from working. This is my experience anyway...
That's interesting SuzelleG but what do you do about it when blood tests show maybe a problem?
Well this is where the problems arises, because from my research it looks like we need T3 to correct this imbalance. However, T3 is not readily available in the NHS. The doctor who interpreted my results also said in his response that my treatment will be problematic through the conventional NHS route. But, at least I knew what the problem was...
Have you listened to Dr Isabella Wentz interviews/info you tube, website. I listened to the Thyroid Summit: lots of cutting edge experts being interviewed. My memory is so poor at the moment(thyroid/B12 I think) I cannot remember the protocols/focus but look her up. I intend doing so. Procrastination is that another symptom
😊I hope so (procrastination is my middle name lol )
Please do you mind on the back of this telling me what reverse means?
Reverse T3 is created under certain situations, that is T4 is not converted to T3 but reverse T3. Reverse T3 blocks the action of any T3 made also by occupying the thyroid receptors for T3 and so really compromises thyroid function by blocking the action of T3. There is no point taking T4 meds as they will just be converted to RT3 and not help at all. This is why RT3 levels need to be taken.
An extract fro Izabella Wentz interview
'I oftentimes, I’ll see these people who are on these awesome food diets and you want to probably supplement with selenium or B vitamin at that point if you’re not feeling well. You want to make sure that your thyroid is working properly.
And then we have stress, just putting yourself in a stressful situation. So we didn’t talk a lot about the adrenals, but the adrenals are basically going to be working in synergy with the thyroid gland. Anytime you have a lot of stress happening, our bodies are going to be producing something that’s known as reversed T3.
Reversed T3 is basically the opposite of active T3, which is our active thyroid hormone. And what it does is instead of making our hair grow free, getting us lots of energy and managing our metabolism, reverse T3 takes up our thyroid receptors and it just sits there. So it just basically blocks the thyroid receptors from receiving any T3. So if you think of it like a car, reverse T3 would be the brakes saying, “Stop it. We’re not going anywhere.”
So just having a lot of stress in your life, whether the stress is coming from an emotional standpoint, from others around you, from not getting enough sleep, from having inflammatory foods or inflammatory people, blood sugar imbalances or infections or toxins in your body, those are things that are going to be contributing to depressed thyroid function.
Wendy Myers: Yeah, I found that clients that have reverse T3 of 10 or above, it’s a definitely a sign of major toxicity in their body that needs to be addressed. I think everyone has to address that, but some more than others with high reverse T3.
Izabella Wentz: And definitely, I totally agree with you that whenever we see elevated reverse T3, that’s a huge indication of toxicity in the body.'
My doc tried to get me to go to a gym for exercise whilst I was on levothyroxine to lose weight. He failed totally to understand that it would have completely exhausted me even get there, let alone take any exercise. Shortly after this I gave up on getting any good advice from any "official" medical source and started taking NDT.
If you live in England the London teaching hospitals are usually better - If you look on nhs choices
for endocrinology and metabolic medicine in search, you can find links to outer London centres .
Kenneth Earle at St Georges University Hospitals NHS Trus,t is linked to St Georges Roehampton SW15 5PN
Stephen Thomas and James Powne are at Guys and St Thomas hospital and both specialists specialise in endocrinology and metabolic medicine. Tel nos are listed . The website can be a bit confusing but gives other countries in blue under main search Post code links to Guys and Thomas's re London SE 1 9RT Great Maze Pond. St Thom. Westminster Bridge Road London SE1 7 EA.
hi, I never gave it a thought , like being totally zonked after my first time in two years going to a yoga class. Went home sat down and fell asleep. Deary me there is a lot to learn. Thank you for your post. Hope you find the results you need.
regards, filenada😫
Hi. Thanks for explain reverse
I think my brain is set in continual worry mode after 16 years of trying to keep afloat panick attacks etc, I thought I'd gone loopy and just put a face on to the world for years, its not good as takes so much energy
But how to reverse this? I like Isabelle Weltz cd , I just don't seem to have the wammy to pull myself out of this - I do believe I turned it round in younger years as I got rid of psiriosis nafurally leaving full pigment etc ( I had pre eclampsia and the waters had gone back into body so I now think this is autoimmune, do you? )
Awaiting private blood results and today so tired and breathless I'm scared
Seeing doc tomorrow somhoping I've seen results by then but will ask anyway for levo script
Px
Ps
Why do I go Hot not cold? I've only been so cold on three ocassions over two years
I am not sure Jeppy. But I think it is more to being unable, or not so good at temperature regulation.
Hot is usually more Hyper tho so maybe to do with too high an amount of meds
However they say with Hashimotos because antibodies are attacking the thyroid that you fluctuate between Hypo and Hyper because as the thyroid cells are attacked this raises the amount of thyroid hormone in the blood and so you have too much temporarily - too hot/hyper and then back to hypo. Back and forth but eventually as more of the thyroid is detsroyed and so less and less able to function the patient will become hypo permanently.
Is Psoriasis connected to thyroid issues ? I am not on thyroid meds or diagnosed but am trying to learn how to help myself as TSH rising and last was at 3.75. I have a rash on hands and wondered if psoriasis.
I can never tell from google images/all look the same but I never suffered from skin issues before. This seems to come and go so I was trying to rule out food/contact dermatitis. But seems here to stay these last 6 months along with neuropathy issues such as burning fingers hands and burning mouth/tongue, memory, brain fog - all i put down to B12 and thyroid, breathlessness, pounding heart etc
Thanks Lynne, poor you
I thought psirosis was joints mainly? I've had it on elbows knees and ankle
I discovered my tsh went to 3 in 2010 and this is when my weight came on, I had also wondered this about your thoughts on fluctuating between hyper and hypo!
And I have thought also that I am predisposed to auto, although up to now the bloods say not, private ones are due back soon
Keniesiologist said I had 'robust' constitution, so this may be why I don't feel cold hardly ever
When I say breathless I mean I'm working harder for breath but it's still there, does this make sense : )
Xx
Ps
I met a lady other day who has RA. She said her specialist asked if she had ever had psirosis, my gut says it's in same spectrum as the cells go haywire and replace much faster, I'm sure stressful personalities play a part
Also her daughter had lupus and this is same family she said, daughter fine Now and did it with diets and exercise?? Unsure what it is
I had weird skin burning on face years ago and was desperate - a homeopath cleared it up, this is when I got interest in alternative medicine. He gave me pulsatilla as it fitted my personality type, Better on the skin than at deeper level as he said, excema surpressed with steroid could lead to asthma at deeper level
Wondering if any alternative therapy may help you resolve this or at least know the link
....the body is so complex, and intermingles, emotions can play such a big part as to the condition, I'm a big believer of this, after reading a book by Louise hay and I know I'm a born worried and also have an unhelpful vivid imagination 😊 Anyway I've got this far, often your instinct is right