Help I need some support!: Hi there, My son... - Thyroid UK

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Help I need some support!

MB_4 profile image
MB_4
26 Replies

Hi there,

My son & myself have had terrible symptoms such as extreme weight gain (myself) hair loss, fatigue, anxiety, bruising this list goes on. This has been going on for over four years.

After vast research, I demanded the GP to send us for an ultrasound which showed nodules on both of our Thyroids. Both being U3 and U4. My son is only 19. Im absolutely beside myself with worry.

After pleading with the Gp to send us for blood tests, We had Free T3 & 4 TSH and TPA. My results are normal (apparently) However, my Thyroid peroxidase antibody test came back at 6.4 however, the endocrinologist states I’m fine and has said shes not going to do anything.

My sons showed he has sub clinical hyperthyroidism. I’m so worried as I’ve read it is very unusual in adolescents males.

My sons levels are:

FreeT3 6.3

FreeT4 15.5

TSH 2.8

I feel I need some support.

Emily

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MB_4 profile image
MB_4
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26 Replies
Brightness14 profile image
Brightness14

Hello I have read your questions but will leave it to other to help you. Please don't worry.

MB_4 profile image
MB_4 in reply to Brightness14

Thank you x

Star13 profile image
Star13

Please can you post both yours and your sons test results with reference ranges (numbers in brackets) as labs have different ranges. This helps us to answer your questions better.

Thanks

MB_4 profile image
MB_4 in reply to Star13

Hi there

Thanks so much for the response.

I have posted my results below. They used the same labs for my son’s tests.

PurpleNails profile image
PurpleNailsAdministrator

Welcome to forum.

Thyroid nodules are very common & the vast majority do not affect thyroid function or cause any issues at all.

Does the scan report give any other details or specify the size of nodule / nodular area. Do they suggest a fine needle aspiration should be done?

Do you have ranges for FT4 & FT3 & your antibodies.

Did your son have TPO antibodies tested?

I guessing the FT3 is very slightly above range & FT4 & TSH are not? Fluctuating levels can occur without autoimmune thyroiditis (Hashimoto’s) so elevated FT3 may be transient.

Occasionally nodules can hyper function, but you would expect low or suppressed TSH (<0.01) and permanently raised FT4 & FT3.

MB_4 profile image
MB_4 in reply to PurpleNails

Hi I have 3 nodules. The largest being 2.4cm. I have had a FNA - Just had results back - Benign.

My son has 3 nodules. 2 are not suspicious at 2mm. He has a U3 1.4cm in size. He too has had a FNA. We are awaiting the results.

My results are as follows - I assume my sons are going by the same range

Medical results
PurpleNails profile image
PurpleNailsAdministrator in reply to MB_4

You have TPO antibodies, so you have confirmation of autoimmune attacking thyroid, antibodies “clear up” after the damage occurs. As your levels are ok & in range “normal” - doctors wont look to treat until they approach abnormal.

Your son needs antibodies test too.

His FT3 elevation with mid range TSH suggests fluctuating levels. TSH follows behind what Frees are doing.

MB_4 profile image
MB_4 in reply to PurpleNails

With regard to my son ..you’re probably right. He goes up and down with his mood along with actual physical appearance change. The same with myself. You seem very knowledgeable- why do you think this is occurring in both of us? He hasn’t had Antibodies as yet.

greygoose profile image
greygoose

My sons showed he has sub clinical hyperthyroidism. I’m so worried as I’ve read it is very unusual in adolescents males.

I think you mean sub-clinical hypothyroidism, not hyper. :) With hyperthyroidism the TSH is so low it's unreadable. Your son's TSH at 2.8 is probably about mid-range and on the verge of hypothyroidism.

It's true that thyroid problems are less prevellant in males than if females of any age - there is no age for thyroid problems, you can even be born with them - but I wouldn't call it that unusual.

To make any sense of any of the other readings, we need the ranges, because they vary from lab to lab. So, if you could post all the numbers for you and your son - results and ranges - that would help us help you. But, don't worry, it doesn't sound like there's any urgent problem for either of you. :)

MB_4 profile image
MB_4 in reply to greygoose

Hi thanks so much for responding.

According to the Endo it’s Sub clinical due to the elevated T3.

greygoose profile image
greygoose in reply to MB_4

Yes, I understand the sub-clinical bit, but he's not any sort of hyper. He's hypo, and probably has Hashi's. Did they check his Tg antibodies as the TPOab were negative?

MB_4 profile image
MB_4 in reply to greygoose

Thank you so much. No we haven’t had antibodies for him as yet.

Why do you think this could be occurring in both of us at the same time? We have had a lot of stress in our lives. We have also been living in a water damaged moldy property…

greygoose profile image
greygoose in reply to MB_4

Well, the mold won't help, of course, but Hashi's can be hereditary. So, if you have high antibodies, his really should be tested. Both TPOab and TgAB.

MB_4 profile image
MB_4 in reply to greygoose

Thank you so much God bless you xx

greygoose profile image
greygoose in reply to MB_4

You're very welcome. :)

SlowDragon profile image
SlowDragonAdministrator

Are you in the U.K.

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Essential to test vitamin D, folate, ferritin and B12

Lower vitamin levels more common as we get older

For good conversion of Ft4 (levothyroxine) to Ft3 (active hormone) we must maintain GOOD vitamin levels

What vitamin supplements are you taking ……..if any

Also VERY important to test TSH, Ft4 and Ft3 together

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

MB_4 profile image
MB_4 in reply to SlowDragon

Hi yes in the UK. Berkshire.

My son hasn’t had the TPO antibodies as his blood request was from the GP - Mine was from the Endocrinologist so was a little more extensive. He will be seeing the endocrinologist soon and I’m wanting the full panel !!

We have always taken vitamins

Although my son was slightly Vit D deficient.

He is also slightly deficient in folate. (Don’t worry we won’t be replacing with folic acid)

We also take:

Vitamin K2

C

Zinc

Magnesium

Selenium

Cod liver oil

Co q10

Vitamin B12 (Methylcobalamin)

Folate

SlowDragon profile image
SlowDragonAdministrator in reply to MB_4

You both need to get TPO and TG antibodies tested

You will almost certainly have to test privately

your TPO are mildly raised …..so NHS should test TG antibodies but frequently don’t

Your son’s TSH shows he’s NOT hyperthyroid

more likely Hashimoto’s

Early stage Hashimoto’s levels fluctuate

MB_4 profile image
MB_4 in reply to SlowDragon

You’re so right!

Blood forms from Endo requested both you mentioned …However, only result for TPO came back! So they obviously didn’t do the TG!

They did this with the cortisol testing I demanded when I was thinking I may have had Cushings at the start of this nightmare!

Both the GP & ENT consultant seem to think my son has Sub clinical hyperthyroidism from those results.

SlowDragon profile image
SlowDragonAdministrator in reply to MB_4

Get full thyroid and vitamin testing privately and then see thyroid specialist

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations so that might eventually transfer

thyroiduk.org/contact-us/ge...

MB_4 profile image
MB_4 in reply to SlowDragon

Thanks very much. I have already had the list sent to me.

SlowDragon profile image
SlowDragonAdministrator in reply to MB_4

Medichecks have 20% off tests today

MB_4 profile image
MB_4 in reply to SlowDragon

Thank you

SlowDragon profile image
SlowDragonAdministrator

FreeT3 6.3

FreeT4 15.5

TSH 2.8

Please add ranges on these

What time was test done

MB_4 profile image
MB_4

Thank you to everyone who has taken the time to reply.

Both of us have undergone FNA - mine came back Benign. We are still waiting for my son’s results.

I made sure they did the bloods first thing in the morning 8am as that’s when levels are most stable. They wanted to do them in the afternoon- I refused.

Thanks again all.

SlowDragon profile image
SlowDragonAdministrator

hair loss often linked to low iron/ferritin

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing.

It’s possible to have low ferritin but high iron

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

If taking any iron supplements stop 5-7 days before testing

Medichecks iron panel test

medichecks.com/products/iro...

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