Positive outcome!: I had a review last week... - Thyroid UK

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Positive outcome!

Enuffisenuf profile image
5 Replies

I had a review last week regarding my thyroid medication. The Dr refused to increase T4 due to suppressed TSH, despite my FT3 & FT4 being low in range. 'Guidelines' were mentioned.I agreed to an endo appointment, but pointed out the one I had in 2021 where he said 'if she feels well, leave her alone.' I asked how many appts I needed before I could take a dose that had clearly suited me before?

At that point my records were read, and I was promised a call in a week after a practise meeting.

It has been a week.....

Good news! I can increase my T4 back to 100mcg, which is where I felt good, with potential to go even higher if needed.

Conditions: I have to have 3 monthly bloods, an EEG and provide 7 days blood pressure readings.

I was happy to oblige. Once I start to feel a bit better I'm hoping that I'll feel more inclined to get off my backside once in a while and get my blood pressure back down!

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Enuffisenuf
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helvella profile image
helvellaAdministrator

If you DO have to drop again, then maybe 87.5?

Dropping 100 to 50 was gross and extremely heavy-handed.

Dropping 100 to 75 is fairly heavy-handed.

A small adjustment. Wait 6, 8 or so weeks. See how it goes. Then either leave it there, drop to, say, 75, or increase back to 100 - but without having caused the poor person suffering from a huge change in the mean time. I think most of us could bear being 12.5 up or down for a few weeks - maybe not liking it but not too, too terrible.

Enuffisenuf profile image
Enuffisenuf in reply tohelvella

It felt like punishment, because I refused to give up T3.

I was really well at 100, so hopefully I won't need to change down again.

I'm looking forward to better health!

SlowDragon profile image
SlowDragonAdministrator

Well done 👏👏👏👏👏👏

Previous post with results

healthunlocked.com/thyroidu...

Definitely Ft4 too low in last test

Well done on getting increase agreed

Retest again 6-8 weeks after increase in dose

Which brand levothyroxine are you currently taking

Do you always get same brand

When was vitamin D last tested

Enuffisenuf profile image
Enuffisenuf in reply toSlowDragon

Currently 50 Teva, 25 Wockhardt, but have previously had Accord.I don't seem to notice brand differences.

Vit D done in August 84.6 (50.10 - 200)

Brightness14 profile image
Brightness14

Hawthorn extract is brilliant for blood pressure I have been taken it for about two years now. Although I live in France, most German GP's prescribe it for blood pressure.

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