thyroid symptom

[Denny39]

Hi,

Sometimes when I walk I experience this sensation that the surrounding is not moving, yet I am walking. It feels like being on a treadmill and caught in a loop. I have to look at the ground or I can get panicked.

I don’t know if it’s vertigo or anxiety, I didn’t experience this prior to thyroid meds & I’ve been on 100 T4 and 25 T3 dose for 3 months now & going to do bloods soon as I’m recovering from sinus trouble.

Thanks

[Jazzw]

It might actually be related to the sinus trouble? When my sinuses are blocked I can feel very odd indeed.

[Jaydee1507 Administrator]

You posted a few months back about blood pooling in your feet and legs. This can be due to dysautonomia that is linked to being hypo although noone knows why they are linked yet.

Dysautonomia can cause a multitude of symptoms including things like you have described.

thedysautonomiaproject.org/...

[Denny39 in reply to Jaydee1507]

I tried going higher on T3 to get rid of hypo symptoms, I went up to 35 T3 which I now know caused the blood pooling as after dropping down to 25 T3 the blood pooling got much better.

I do believe I possibly have dysautonomia symptoms maybe as the meds control me being able to walk, I can walk but it never feels great but I just push myself. And I couldn’t run or do exercise again unless I magically improved.

I wonder if people who have the hypo under control fully end up with the dysautomia going away or it is something I might always have to live with??

[Jaydee1507 Administrator in reply to Denny39]

Its a separate condition to Hashi's or hypo, just runs along side it. Its believed that there are other antibodies that cause it but so far they haven't narrowed down which antibodies, as there are a number involved and research just hasn't got far enough yet.

Certainly being optimally replaced as opposed to a bit too much or not enough will help, as will getting all vitamins to optimal. Sadly it is something you will have to live with.

The POTS UK website has some good informtion about self help, dotors etc

potsuk.org/

[Beefull8]

A lot of people get POTS or vertigo from covid or the vax. I had that with long covid and also have hyperthyroidism.

[Denny39 in reply to Beefull8]

Is your pots symptoms gone now?

My immune system is low, I’ve been trying to shake off this sinus issue about 4 weeks now.

These symptoms have been going on a few years now, which I am suspecting is pots.

[Beefull8 in reply to Denny39]

I think it’s gone but I still get tired quickly but could be Graves. I can exercise again and am not as weak but mines was also from low ferritin causing symptoms.

[Denny39 in reply to Beefull8]

Some people say b12 injections can resolve pots symptoms but I am yet to try this.

[Beefull8]

Maybe try pills first? My b12 is normal but I do have antibodies that are high so mines might be a different issue

[Dalias]

Hello,

I had the same issues with balance and felt the ground was moving around me after taking T3 -liothyronine. only 5mg to supplement my Levothyroxine after about 3 /4 months...the symptoms then just led to nauseas and severe migranes...so I had to stop and go back on Levothyroxine only.

Maybe we experience all different things but I was so unwell with T3. When I stopped it all cleared up very quickly.

[Brigland27]

Thyroid problems leads to weird sensations before I was diagnosed I had a weird experience a few times, it always happened on the outside of my front door just as I was about to put the key into the slot my body gave me this sensation that I was jumping up & down but I definitely wasn't? thankfully I don't get this anymore.

[samaja]

This also sounds like a symptonm of B12 deficiency (and dysautomia is one as well).

[Denny39 in reply to samaja]

Do you have b12 injections or take it orally? Thanks

[samaja in reply to Denny39]

To be honest the only way to be sure it will work is to have injections as with malabsorption of any kind tablets won't work so you would be just wasting your time. B12 is one of the cofactors that needs to be really good for the T3 to work well too.