I am at a complete and utter loss. Why as I optimise dose do I feel nauseated for days now?
As of a few weeks ago I’ve been alternating doses of 75mcg own day, followed by 100mcg of Levothyroxine only for hypothyroidism (Hashimoto). Same brand throughout treatment thus far.
Perhaps it’s nothing to with thyroid, only it’s hard not to worry when one symptom after another shows up in this optimising dose journey. Though, of course, I am grateful some clear up or at least ease slightly.
Has anyone experienced this?
GP also want’s to do a cortisol test to rule out Adrenal Insufficiency/Addisons as I’ve also had a prolonged period/menstruation for over 2 weeks! Oddly, this prolonged period started the same week I increase my dose to the above.
Gosh! I can’t wait to feel better! I feel like giving up on this treatment. I know it’s common to feel worse before better, but a prolonged period and nausea (definitely not pregnant)… “COME ON NOW”! is all I want to scream. I can’t help but think that, the Levothyroxine sent all my hormones out of whack now? 😠 I had regular cycles and ‘normal’ before treatment, and never had constant nausea!
I think I’m just needing someone to reassure me this is all par for course as I can’t find much on my current symptoms relating to optimising dose.
Love from me, having a rough day on the other side of the ether 😳
So fed up with it all.
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period abnormalities are common in hypothyroidism. That’s how a new GP spotted I should be tested. I seem to have a 2-3 week bleed every few months, linked I think to a low swing in hypothyroidism (have just had a high swing) next following covid I’ve had two bleeds in 3 weeks. Also peri menopausal. Also have fibroids that seem to do their own thing.
GP and gynae is pushing mirena coil but I’m not keen anteverted uterus, history of depression etc. previous bad experience with coil and removal.
Transexamic acid is a least worst solution for reducing bleed length/flow.
I’ve got 9 years on you though poor thing. How is your ferritin with that long bleed do you need a course of heme iron to get your ferritin level up so you convert your T4 better? I can vouch for three arrows, 2 months of their iron repair took me from below/low in range to 140 (I forget the range) I’m maintaining with a vegan biglycinate now.
Definitely take the GP up on investigations for adrenals so expensive to find out for yourself. 🤗
Nausea - tricky one could it be low blood sugar related to anaemia & insulin response from being hypo. I get icky if my blood glucose is swinging around.
Thank you for sharing your experience. I understand period abnormalities are common In hypothyroidism, only mine have started since Levothyroxine. Before treatment, my cycles were so predictable including ovulation and bleed.
I’ll discuss low blood sugar with GP. by the way, the GP is only doing blood cortisol test and as I understand it from forum members experiences these are not always accurate.
I'm the same as you Lalatoot,it makes me feel unwell if I'm slightly later of taking my split dose. During the night dose is ok but if I'm late taking my afternoon one I don't feel right.
I agree. I've been told to alternate 100/75 and I'm not feeling great on that. Have decided to go to 87.5 daily instead. I can't cope with swings. Not in my stomach and not with my energy levels and sleep. Pill cutter is my friend
no, no, no, no......how would you know what was affecting you if that were the case? I've tried always to take the view from this forum that one brand at a time is best.
You explain to your GP surgery that alternating isn't good for you and ask the to prescribe tablets of doses to suit you. I used to get 50mcgs and 25mcgs from my surgery to make up my doses. I still get 2 X 50mcg daily for my 10pmcg daily dose as I take my levo first thing and bedtime. I have never felt well taking the total daily dose in one go.That will depend on the brand you use. A 75mcg tablet and half a 25mcg tablet would make 87.5. Or a quarter of a 50mcg tablet will give you 12.5. You have to accept that when you quarter tabs you will end up with inaccuracies but that is better than being poorly.
Thank you for sharing. I think for now my first step is to use the same batch and brand, so two 50s one day, then 50 and 1/2 of 50 (for the 75mcg) the next. The 100mcg I am taking has been reported by members as having caused issues, you never know.
Failing that, I’ll consider switching to another brand to get to 87.5mcg each day. Hopefully I won’t remain on this dosing regime for too long. Although even one more day is enough.
It’s Accord and even when on 100mcg at start of treatment and later reductions of 50mcg and 75mcg , I did not experience this, so why am I am now? I’m not sure how to get that to 87.5mcg for daily dosing without alternative days dosing as I have been.
I often feel sickly first thing in the morning.some days a herbal tea settles it and I can't face a coffee. Just one of those things you adapt to. Hope you feel better soon.
try taking a very good probiotic ( not the supermarket drink rubbish) I alternate 75/100 and have done for 2 months since having to come down from 100 daily after 24 years on the same dose. (Age 56) I take the same accord brand and cut my 50 in half to make the 75. The Probiotic I take is by Nu Nu and have taken it for the past 6 years.
It’s funny you should mention this. I usually have probiotics but as the supermarket didn’t have it, I have been without for nearly a week. I have some now though. I haven’t heard or seen NU NU so I’ll bear that in mind.
I get mine from Amazon and there are thousands of 5 star reviews, it’s helped me enormously and wouldn’t be without them now. Tip- keep them in the fridge.
Delurking to say constant nausea was one of my main symptoms pre-diagnosis. I told the GP that together with the fatigue, it felt like I’d been poisoned! I wonder whether a slowed metabolism means food is sitting longer in the stomach or whether low stomach acid has something to do with it. It stopped once I was optimally dosed with levo, which in my case is 75mcg.
So sorry you’re experiencing this. I can’t say for sure but it’s really interesting what you say as I was on 75/100 alternating for years and often felt nausea, generally helped if I nibbled something, the ginger suggestion is a good one. Right now I’m doing a swap over to Erfa (we should all have this option right? and I’ll be fighting for this on the nHs soon) be interesting to see if nausea fades…. Keep going it IS a vile condition with have to handle and I’m only just starting to realise nearly all my health issues over last 30 years are probably due to thyroid imbalance! 💜
Thank you for sharing and your encouraging words. I just can’t believe how rotten I feel. And, I believe you. As some symptoms resolves, it’s easier to believe to that I’ve been living with this horrid disease for some time.
I really feel for you, it sounds rotten at the moment for you. Nausea is the worst!
I don't have much to add other than my sympathy. It does sound like varying your dose can affect some like this
Your symptoms sound a lot like how I felt a few years ago, when (I now strongly suspect in retrospect) my thyroid was underperforming although still giving it a go. I would swing due to hashi attacks but as I didn't eat gluten these were far apart. I assumed it was peri-menapause and after a frustrating and upsetting appointment (whilst high with excess thyroid mid hashi attach) with a child-doctor I decided to 'tough it out'. (Big mistake).
I had very variable, long heavy periods after always having a very easy time with them before. I would often feel nauseated and dizzy, especially if I did something that would affect my blood pressure (bend over, exercise, drink).
I would get more breathless. I treated it as anaemia and made sure I ate well and supplimented with Spatone and vit D and would feel better for a while.
You have sound advice from others, but looking at your vitals such as blood pressure and blood sugar might give you additional clues to your cause.
I had a rough time going up from 50 to 75mcg. It was like nervous nausea for me. Mornings were worse. Was like a nervous wreck at work and that totally not me. I was going to just give it all up, stop taking levothyroxine completely. The people on this website said stick it out so I did. It did eventually go away. The jump from 75mcg to 100mcg was opposite. I seemed to feel good immediately. Just need to ride it out.
My experience was having nausea & upper stomach knawing for long spells (& short) spells, complained to GP for 8 years, found when I self medicated with NDT I was a much much better (good probiotics too), this last month I finally had an endoscopy which shows I have gastritis (incidence of gastritis with Hashimotos can be as high as 40% -autoimmune gastritis)
Right now, I just so humbled with everyone’s kindness and I will response to each post, but for now I just wish to share thank you from the bottom of my heart.
I am still feeling so fragile with it all. And, I am grateful that I have the forum.
Im same feel you.. got worst since taking Thyroxine with long list symptoms extreme fatigue, extreme brain fogs, extreme dizziness...extreme hair loss..anxiety depressed .. everything messed up.. I'm like a Zombie .. feel like giving up lots of time 😔..
which never go away for 7 yrs now, terribly worst after covid..bed ridden .. got stucks, nothing no one could help!!
same alternate doses 75&100.. dose fluctuated all time.. definitely never get along with Thyroxines!!
Enough!! I'm on the way to a Nature healings..and I believe 🙏
When I had my full thyroidectomy in 2019, I was put on T4 levothyroxin, my medical history was graves thyrotoxicosis) diagnosis of lactose intolerant and colitis in 2015.
So I start taking this T4 within a number of days I start to have bowle /stomach issues but surgeon who I'm still under noticed I still looked hyper so decrease my t4 from 125mg to 100mg, I'm now struggling with very bad gastric problems including bouts of nausea 🤮.. I felt awful and like yourself I just wanted to feel well again.
Surgeon again noted hyper symptoms and decrease me FUTHER to 75mg..this did nothing for the gastric issues, he then dismissed me back to gp care... "CARE"... "Don't make me laugh".. He had no idea how to treat me he just kept on insisting I carry on as the side effects would lessen... They did not... To the point I was now throwing back the actual drug that is soupose to help me.
Eventually he asked an endocrinologist as my bloods were awful and I got on T3 liothyronine, I'd love to say everything is great now.. But I can't I'm still having the same gastro issues and I'd swear it's making my menupausal symptoms come back with a vengeance, I think like you this drug is doing something to my hormones, but try putting that past the specialist's and they look at you like you need to be in an asylum 😠
When vitamin b12 deficient in 2013, I had a feeling of constant nausea. Although G.P. didn't flag up folate, I found out recently it had just scrapped over the bottom of the range at that time. If folate and B12 too low , I felt constant nausea. Perhaps check your levels for both?
I just wish to thank everyone again, and feedback that that boiling fresh chucks of ginger for about 5/10mins follows by simmering for another 20 helped with the nausea a great deal.
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